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For years I have had pain in my joints, especially in my hips, knees, and hands. I struggled with fatigue all my life.
Xrays and much blood work were done every year, looking for signs of Arthritis. My fatigue was chalked up to me being a “lazy kid” and then teen, and then my being a single mom as the cause.
My sister was diagnosed a year or so ago for her symptoms that are very similar to mine: unlike me she had a doctor who listened.
I moved to a different area of Iowa and found a new doctor. After a year I finally got a referral for genetic testing. Today I was diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS). I’m so glad to finally get answers. The doctor I saw gave me a pamphlet about The Ehlers-Danlos Society, so now I’m looking to find information on dealing with my diagnosis, easing my pain, and helping reduce my fatigue.
Categorized in: Breaking Down Barriers Stories