Connect With Others

There are many different barriers that our community faces globally, and we want to work together to break down these barriers and to open up the conversation around what our community is experiencing. Connect with others, share your experiences, and find support.

Our weekly, monthly, and quarterly virtual Let’s Chat groups for people from all over the world are a chance to come and share your story and chat with others for support.

Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls. Learn more. 

Online communities are a great place to connect with others living with, or affected by, the Ehlers-Danlos syndromes and hypermobility spectrum disorders. Search by keyword, topic, or theme, to find conversations and communities relevant to you. Learn more. 

Local support groups and nonprofit organizations/charities work hard, all around the world, to increase awareness about types of HSD and EDS, and to support those living with these conditions in their communities. Find local groups close to you, ask for recommendations, and connect with others. Learn more. 

Join CONNECT today: The Ehlers-Danlos Society’s bi-weekly email newsletter today to hear the latest news, stories, and ways to get involved! Stay connected.