Patient Expert (Ehlers-Danlos syndrom Rlksforbund Sverige)Caroline van Mourik
Patient Expert (Ehlers-Danlos syndrom Rlksforbund Sverige)Caroline is a bio- & geologist who has been active in the Swedish patient-organization, previously as Chair but later mainly as the scientific editor. She even presented a paper at the first international symposium on EDS in Ghent, 2012 and frequently lectures about EDS, both for the medical field as well as (for) laymen. At present her main focus is working on making scientific publications better understandable for non-experts.
