Category: Ehlers-Danlos in the News

Sia, live in Boston 2016

Sia reveals having Ehlers-Danlos syndrome

Yesterday the artist Sia tweeted about having Ehlers-Danlos syndrome and sent out a heartfelt message to others suffering pain to let them know they are not alone. We are sorry to hear of the chronic pain, fatigue, and battle with EDS that Sia is facing. We have a dazzling, supportive EDS and HSD community here
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Fighting Ehlers-Danlos syndromes in Namibia

by Ngaevarue Katjangua, originally posted 31 Oct 2018 by The Namibian WHILE some people battle with one disease at a time, a person who suffers from the rare Ehlers-Danlos Syndromes has to endure several conditions at the same time. The conditions range from dislocating joints, bruising skin, poor eyesight, fatigue, frequent collapsing and insomnia as
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What I Wish I Knew in High School as a Queer Person with Disabilities

Advice for navigating—and maybe even changing—institutional bias on your journey through high school and beyond. By Alaina Leary. Originally published in VICE magazine’s Power and Privilege Issue on Oct. 15, 2018. I faced a maze of questions as a high schooler applying to colleges in 2010. What universities were LGBTQ+ friendly, which one had the biggest
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