Category: Ehlers-Danlos in the News

Sia, live in Boston 2016

Sia reveals having Ehlers-Danlos syndrome

Yesterday the artist Sia tweeted about having Ehlers-Danlos syndrome and sent out a heartfelt message to others suffering pain to let them know they are not alone. We are sorry to hear of the chronic pain, fatigue, and battle with EDS that Sia is facing. We have a dazzling, supportive EDS and HSD community here
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Fighting Ehlers-Danlos syndromes in Namibia

by Ngaevarue Katjangua, originally posted 31 Oct 2018 by The Namibian WHILE some people battle with one disease at a time, a person who suffers from the rare Ehlers-Danlos Syndromes has to endure several conditions at the same time. The conditions range from dislocating joints, bruising skin, poor eyesight, fatigue, frequent collapsing and insomnia as
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Personal setback leads to pioneering research

Originally published by the University of Surrey on 05 Oct. 2018 University is a time to grow your mind, expand your horizons and develop as an individual. A key part of this experience is learning how to deal with setbacks. For one Surrey alumna, falling ill partway through her studies was the biggest hurdle she’s
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