Category: Ehlers-Danlos in the News

When It’s More Than ‘Just’ Being Double-Jointed

I didn’t see it when it first came out, but there’s been a little bit of an outrage explosion in the hypermobility and Ehlers-Danlos Syndrome patient community. A petition has been launched on change.org demanding an apology from ITV show This Morning. “There was a phone in regarding whether children should be excused from PE
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Thrill-seeking fundraisers collect over £4,000 with abseil down Peel Tower

MORE than £4,000 was raised for two charities last weekend as 76 brave volunteers took part in an abseil down Peel Tower. The team of fundraisers completed the 128ft challenge on Saturday to support Annabelle’s Challenge, raising awareness of six-year-old Annabelle Griffin’s battle with life-threatening condition Vascular Ehlers-Danlos Syndrome (VEDS), and the Murray Muir Institute.
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Parents of girl with rare genetic disease worried by Fairfield Hospital care

A FAMILY whose daughter suffers from a rare genetic disease have expressed serious concerns over a lack of paediatric care provisions at Fairfield Hospital. Annabelle Griffin suffers from Vascular Ehlers-Danlos Syndrome (VEDS), an incurable condition that means she is at daily risk of her internal organs and arteries spontaneously rupturing. And after the six-year-old took
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Girl who could be killed by playground bump enjoying her first year at school

SHE has become something of a Bury celebrity — the spirited young girl with the wide smile for whom a bump in the playground could be fatal. A ‘ticking timebomb’ is how her parents describe five-year-old Annabelle Griffin’s incurable and life-threatening condition. The youngster was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) — a collagen deficiency
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