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World Keratoconus Day

Picture looking at the world through a lens that blurs, clouds, and distorts everything you...

Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States

A research team at the University of Minnesota conducted research on the healthcare experiences of...

The Impact of Podiatric Intervention on the Quality of Life and Pain in Children and Adolescents with Hypermobility

A newly published study, The Impact of Podiatric Intervention on the Quality of Life and...

Self-reported throat symptoms in Ehlers–Danlos syndromes and hypermobility spectrum disorders: A cross-sectional survey study

Ear, nose, and throat (ENT) specialists at a laryngology clinic in the United Kingdom have...

In Memoriam: Professor Peter Beighton

The Ehlers-Danlos Society is deeply saddened to hear of the passing of Professor Peter Beighton,...

Long Covid and Generalized Joint Hypermobility

Dr. Philip Bull and Dr. Alan Hakim, in partnership with Long Covid advocate, Gez Medinger,...

Publication of the 2023 Diagnostic Framework for Pediatric Joint Hypermobility

Many doctors worldwide hesitate to diagnose hypermobility spectrum disorders (HSD) or Ehlers-Danlos syndromes (EDS) in...

Diagnosis and management of vascular Ehlers-Danlos syndrome: Experience of the UK national diagnostic service, Sheffield.

The Ehlers-Danlos Syndrome National Diagnostic Service in Sheffield, UK, has published a new paper on...

Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes

A newly published paper, Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview...

Physical activity and physical fitness in children with heritable connective tissue disorders

Physical activity and physical fitness have been described as important health-related outcomes for all age...

Autism Acceptance Month

April is Autism Acceptance Month. Studies show that people with joint hypermobility, Ehlers-Danlos syndromes (EDS),...

Assessing Bleeding Symptoms in Pediatric Patients With Generalized Joint Hypermobility 

The Ehlers-Danlos syndromes (EDS) are known to be associated with increased bleeding symptoms, including easy...

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