Category: Society News

Tethered Cord Syndrome in EDS Research

Internationally renowned general neurosurgeon, Dr. Petra Klinge, et al, have published new research, Diseased filum terminale as a cause of tethered cord syndrome in Ehlers Danlos syndrome: histopathology, biomechanics, clinical presentation, and outcome of filum excision. Many people with Ehlers-Danlos syndrome (EDS) suffer from back and leg pains and in addition, neurological symptoms, including bowel
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Building a nutrition toolkit

Building your nutrition toolkit

Thank you to Lorna Ryan for sharing top tips and information throughout this week talking about nutrition and hydration! Today’s final topic is building a nutrition toolkit. #NutritionandHydrationWeek⁠ The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan.  “A nutrition
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Optimizing hydration

Optimizing hydration with Lorna Ryan

Sources of hydration – and why hydration is so important!⁠ Today is post six for #NutritionandHydrationWeek with Lorna Ryan, Registered Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner. ⁠ The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan.  Everyone’s heard
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Nutrition Hacks

Nutrition Hacks with Lorna Ryan

We are joined this week by Lorna Ryan, Registered Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, for Nutrition and Hydration week, and the topic is ‘Nutrition Hacks.’ The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan.  “There are some
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Daily nutritional goals

‘Daily nutritional goals’ with Lorna Ryan

We are joined this week by Lorna Ryan, Registered Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, for Nutrition and Hydration week and the topic is ‘Daily Nutritional Goals.’ The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan.  Daily nutritional
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Foods for daily life

‘Foods for daily life’ with Lorna Ryan

This week we are joined by Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, Lorna Ryan, for Nutrition and Hydration Awareness Week. Today’s topic is Foods for Daily Life.  The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan.  “Food basics
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What nutritional plan should you follow with EDS or HSD?

Nutrition in EDS and HSD with Lorna Ryan

Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, Lorna Ryan, is joining us for Nutrition and Hydration Week. Today’s topic is Nutrition in EDS and HSD! The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan.  “I’m asked a lot in
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Nutrition and Hydration Week

March 14-20 is World Nutrition and Hydration Week! But why are nutrition and hydration important?  Lorna Ryan is a Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner who has a clinical practice based in London, UK, and online internationally. Lorna is the Chair of the Diet and Nutrition Working Group of the International Consortium on the
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January 31 is International Day of the Zebra!

Day of the zebra On Monday, January 31st, the world recognizes International Day of the Zebra. On this day, we celebrate our own zebra dazzle: individuals living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Education and awareness Medical students have been taught for decades that, “When you hear hoofbeats behind you, don’t expect
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