Category: Society News
June is Men’s Health Month. Men can and do endure the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and associated symptoms and conditions. Even though EDS and HSD are underdiagnosed, they can View page
*Content Warning: discussion of racial violence and trauma* Over a year into a global pandemic, stressors are still ever–present for many. In addition to COVID-19, there is highly publicized racial violence and discrimination. The world awakes this View page
February 28 is Rare Disease Day, but what is a rare disease? In Europe, a rare disease is defined as when it affects fewer than one in 2,000 people. In the View page
Day of the zebra On Sunday, January 31st, the world recognizes International Day of the Zebra. On this day, we celebrate our own zebra dazzle: individuals living with Ehlers-Danlos syndromes View page
In order to continue to research for our future, we are delighted to announce our new EDS and HSD Global Registry and Repository. This platform, in partnership with LunaDNA, will View page
On January 10, 2021, The Ehlers-Danlos Society hosted an awareness event exploring misdiagnosis of hypermobility spectrum disorders [HSD] and Ehlers-Danlos syndromes [EDS] and child abuse. The Ehlers-Danlos Society has been View page
The Ehlers-Danlos Society is now welcoming applications for its second microgrant round and Basic Research Major Grants. Microgrants In early 2020 the applications opened for the Spring Microgrants program 2020. View page
November is World Scholarships Month and the perfect time to announce our 2021 Event Scholarships! Thanks to the generosity of donors, The Ehlers-Danlos Society will be providing a number View page
View page
We cherish the opportunities our in-person events give us: meeting so many of you and enabling people living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders a chance to connect View page
