The Ehlers-Danlos Society is funding a series of vital research studies to further the understanding of hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD), with the goal of finding the underlying causes for these conditions, as well as developing diagnostic tests. This falls under our GAP Research priority – looking into the genotype and View page
Internationally renowned general neurosurgeon, Dr. Petra Klinge, et al, have published new research, Diseased filum terminale as a cause of tethered cord syndrome in Ehlers Danlos syndrome: histopathology, biomechanics, clinical presentation, and outcome of filum excision. Many people with Ehlers-Danlos syndrome (EDS) suffer from back and leg pains and in addition, neurological symptoms, including bowel View page
Thank you to Lorna Ryan for sharing top tips and information throughout this week talking about nutrition and hydration! Today’s final topic is building a nutrition toolkit. #NutritionandHydrationWeek The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan. “A nutrition View page
Sources of hydration – and why hydration is so important! Today is post six for #NutritionandHydrationWeek with Lorna Ryan, Registered Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner. The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan. Everyone’s heard View page
We are joined this week by Lorna Ryan, Registered Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, for Nutrition and Hydration week, and the topic is ‘Nutrition Hacks.’ The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan. “There are some View page
We are joined this week by Lorna Ryan, Registered Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, for Nutrition and Hydration week and the topic is ‘Daily Nutritional Goals.’ The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan. Daily nutritional View page
This week we are joined by Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, Lorna Ryan, for Nutrition and Hydration Awareness Week. Today’s topic is Foods for Daily Life. The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan. “Food basics View page
Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner, Lorna Ryan, is joining us for Nutrition and Hydration Week. Today’s topic is Nutrition in EDS and HSD! The following information should not constitute medical advice, dietary advice, or treatment. Individuals should consult a healthcare professional before making changes to their nutritional plan. “I’m asked a lot in View page
March 14-20 is World Nutrition and Hydration Week! But why are nutrition and hydration important? Lorna Ryan is a Clinical Nutritionist/Nutritional Therapy, and Lifestyle Medicine Practitioner who has a clinical practice based in London, UK, and online internationally. Lorna is the Chair of the Diet and Nutrition Working Group of the International Consortium on the View page
Day of the zebra On Monday, January 31st, the world recognizes International Day of the Zebra. On this day, we celebrate our own zebra dazzle: individuals living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Education and awareness Medical students have been taught for decades that, “When you hear hoofbeats behind you, don’t expect View page
