Category: Society News

A very special evening with Miss America 2020, Camille Schrier!

International Day of Women and Girls in Science 2020 is a day to achieve full and equal access to, and participation in, science for women and girls. On this day, we are delighted to announce that Camille Schrier, Miss America, will be joining us for a very special evening at our Global Learning Conference in
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Ask The Society: Webinar January 12, 2020

Join The Ehlers-Danlos Society at 12 noon EST on January 12, 2020, for “Ask The Society”, a webinar with Board of Directors Chair, Susan Hawkins; President and CEO, Lara Bloom; Chair of the Medical Board, Dr. Clair Francomano; Chief Medical Officer, Dr. Alan Hakim; and Chief Scientific Officer, Professor Fransiska Malfait.  We want to really
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Child Protection in EDS and HSD Roundtable Discussion

The Ehlers-Danlos Society has been hearing from a growing number of families and individuals sharing their experiences of being diagnosed with a factitious disorder, either imposing ill health on self, or, more typically a parent on a child. People have spoken publicly at meetings and shared the most harrowing and heart-breaking stories that have had
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The Ehlers-Danlos Society Receives $1 Million Gift To Advance Research

NYC, USA — The Ehlers-Danlos Society is delighted to announce an anonymous gift of $1 million US dollars to advance research within the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and associated symptoms and conditions.  This generous donation sets the foundation for vital research, and has enabled The Ehlers-Danlos Society, in conjunction with The EDS
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EDNF Fraudulent website impersonation

After becoming The Ehlers-Danlos Society we launched the website www.ehlers-danlos.com  – the EDNF website was closed down. The old website www.ednf.org has unfortunately been taken over and is illegally impersonating The Ehlers-Danlos National Foundation, and consequently The Ehlers-Danlos Society. We have filed all necessary reports with the FBI as this is an internet crime that falls
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Thank You Nashville!

A huge thank you to all of you who attended our Global Learning Conference in Nashville, either in person or virtually via our live stream! This year’s conference was our biggest conference yet with a record number of over 850 attendees, 130 medical professionals, and for the first time, over 3,200 people watching via live-stream from
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