Patient Expert (Belgium)
Charissa Hermine Frank
Charissa Frank is the president of the Flemish Patient Organization of Hereditary Collagen Disorders in Belgium, not only representing Ehlers-Danlos syndrome, but other disorders such as Marfan and Loeys-Dietz as well.
After a successful international business career and having lived in several different countries all over the world, she now resides in Belgium and focusses her attention on managing and leading the Flemish patient organization because there’s still a long way to go for patient rights, in particular for rare diseases, in Belgium.
