I am a mom of two children who has lived with hEDS all my life. My symptoms have been present since I can remember but having increasingly gotten worse over the years. Like many I was not diagnosed until I was 31. I was told everything was in my head. I finally decided to start self-advocating when I was 30. It took over a year of my own research and continually educating doctors to get someone to listen. I was diagnosed with hypermobile Ehlers-Danlos syndrome and several of the comorbidities.
I hold a BS in Biology and was an EMT for my local fire department. I served eight years in the Army as both communications and military police. Since diagnosed I have run social medial support groups for those with EDS and connect with local EDS patients for meet-ups and support. I am very passionate about further scientific knowledge and understanding of this disorder, and will continue everyday to be a voice for the zebras!