Published: 27/01/2016 Tags: Ehlers-Danlos in the News

Community helps devastated family after dad and daughter diagnosed with the same potentially fatal rare genetic disease

A mum has told of the heartbreaking moment she discovered her husband and eight-year-old daughter had the same potentially fatal genetic disease.

Dawn Woodward was told her husband Dave had Vascular Ehlers Danlos Syndrome, a rare genetic disorder which could kill him at any time.

Then the family was devastated when their only daughter Evie was also diagnosed with the inherited disease – for which there is no treatment or cure.

In the three years since Dave’s diagnosis, the family has raised thousands during annual events for a charity supporting the disease.

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