Our son was diagnosed at the age of 3 after several accusations by doctors of hurting our son. He had minor issues up until around the age of 12 when he outstretched his right arm leading to an arterial bleed. He had to have his arm amputated and spent six weeks in hospital. A few weeks after he was released he went to get off the settee and damaged his artery in his leg. The doctors were fully prepared to amputate, but luckily this didn’t happen. Connor fought daily with the pain he was in, trying to manage and control this with medication. At the age of 20 our beloved gorgeous son passed away due to an aorta dissection. His artery burst to his heart and there was no way of saving him. This truly broke our hearts as we were on holiday in a foreign country, while Connor was at home enjoying his life. We will never forgive ourselves for not been there to say goodbye to such a loved son. This is a terrible terrible condition that should have more research done as not many medical professionals are aware of it.
—Paula Fieldsend
