Last Updated: 17 April 2023
The Ehlers-Danlos Society
This policy should be read together with our Privacy Notice which sets out how and why we collect, store, use and share personal information generally, as well as your rights in relation to your personal information and details of how to contact us and supervisory authorities if you have a complaint.
The cookies we use on our website fall into the following categories:
- Necessary Cookies – These cookies are essential to enable you to move around the Site and use its features. Without these cookies, services you have asked for (such as remembering your login details or taking a purchase to the checkout or e-billing) cannot be provided. They do not collect information about users that can be used for marketing and expire when the user leaves the website or closes their browser.
- Marketing or Targeting Cookies – These are cookies placed by third parties on our website which record your visit to our website, the pages you have visited and the links you have followed. They use this information for advertising purposes.
Learn More About Cookies
Cookies Used by The Ehlers-Danlos Society
The cookies we use on our website and their purposes are as set out in the following table:
|Set By||Cookie Name||Domain||Duration of Processing||Purpose|
|Google Analytics||https://support.google.com/analytics/answer/6004245||2 Years||To track the number of website visitors, and visitor browsing|
|Google Tag Manager||https://support.google.com/analytics/answer/6004245||3 Months||To accurately track the actions a user takes while visiting|
|Doubleclick||https://policies.google.com/technologies/ads||1 Year, 24 Days||To track how a user behaves on the website and to present them with ads relevant to|
their user profile.
|Meta||Meta Pixel||https://www.facebook.com/business/help/471978536642445?id=120537668283 2142||3 Months||To display advertisements when on Facebook or a digital platform powered by Facebook, after visiting the|
|Oracle||AddThis||https://www.oracle.com/uk/legal/privacy/addthis-privacy-policy.html||Never||To track share counts via social|
|YouTube||https://www.youtube.com/intl/ALL_uk/howyoutubeworks/our- commitments/protecting-user-data/||6 Months|
To track user preferences for Youtube videos embedded on the
|YouTube||https://www.youtube.com/intl/ALL_uk/howyoutubeworks/our- commitments/protecting-user-data/||Session||To track views of embedded videos.|
Cookie Sharing with Third Parties
Please note that we do not share the information collected by the cookies we set with any third party.
Google, Facebook, and Oracle may share the information collected by the DoubleClick, Meta Pixel, and Add This cookies with third parties for the purposes of targeted advertising. Please visit their privacy policies for more information, using the links set out in the table above.
Changing Your Cookie Preferences
You can allow or block cookies by activating the setting on your browser that permits you to change the setting of all or some cookies. Please note that disabling cookies may affect the availability or functionality of our website. Most of the website will function normally, however, functions that rely on cookies such as the autofill/autocomplete feature when completing forms or payment information, will be disabled.
If you would like more information on how to manage cookies on some popular browsers, please click on the links below.
Policy Review and Amendments
This policy will be reviewed annually, by the end of the first quarter (Q1), to ensure that it continues to meet the needs of The Society and its community.
How to Contact Us
Email us at: [email protected]
Call us: +1 410-670-7577 or +44 203 887 6132
Or write to us at: The Ehlers-Danlos Society Headquarters, 447 Broadway, 2nd FL #670, New York, NY, 10013, USA or The Ehlers-Danlos Society Europe Office, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, United Kingdom