Last Updated: 22 March 2024

The Ehlers-Danlos Society

Cookie Policy


The Ehlers Danlos Society (“Ehlers Danlos”, “we, “our”) uses cookies on its website. This Cookie Policy explains more about cookies and why we use them. It also explains how you can control and opt out of receiving them. 

This policy should be read together with our Privacy Notice which sets out how and why we collect, store, use and share personal information generally, as well as your rights in relation to your personal information and details of how to contact us and supervisory authorities if you have a complaint. 

We update this Cookie Policy from time to time in response to changes in applicable laws and regulations, changes to our processing practices and to products and services we offer. When changes are made, we will update the final section of this policy. Please review this Cookie Policy periodically to check for updates. 

About Cookies 

A cookie is a small text file which may be downloaded to your device when you visit our website. We use cookies to allow our website to function correctly, remember your preferences and to track visitors to our website. 

The cookies we use on our website fall into the following categories: 

  • Necessary Cookies These cookies are essential to enable you to move around the Site and use its features. Without these cookies, services you have asked for (such as remembering your login details or taking a purchase to the checkout or e-billing) cannot be provided. They do not collect information about users that can be used for marketing and expire when the user leaves the website or closes their browser.
  • Statistics or Analytics Cookies We use cookies to collect information about the use of our website by visitors such as the pages they visit most often, how they arrived at our website and associated information. These do not collect any directly identifiable personal information about visitors.  We use these cookies to learn more about how our website is used to identify problems and areas for improvement.
  • Functionality Cookies Functionality cookies remember the choices you make when you visit our website. This includes, for example, your consent to the use of cookies on our website.
  • Marketing or Targeting Cookies These are cookies placed by third parties on our website which record your visit to our website, the pages you have visited and the links you have followed. They use this information for advertising purposes.

Learn More About Cookies 

For further information on our use of cookies, including a detailed list of your information which we and others may collect through cookies, please see details in the table below. 

For further information on cookies generally, including how to control and manage them, please visit or 

Cookies Used by The Ehlers Danlos Society 

The cookies we use on our website and their purposes are as set out in the following table: 

Set By Cookie Name Domain Duration of Processing Purpose 
Google Google Analytics 


2 Years To track the number of website visitors, and visitor browsing behaviour. 
Google Google Tag Manager 


3 Months To accurately track the actions a user takes while visiting the website. 
Google Doubleclick 1 Year, 24 Days To track how a user behaves on the website and to present them with ads relevant to their user profile. 
Meta Meta Pixel 3 Months To display advertisements when on Facebook or a digital platform powered by Facebook, after visiting the website. 
Oracle AddThis Never To track share counts via social media channels 
Google YouTube 


6 Months To track user preferences for Youtube videos embedded on the website. 
Google YouTube 


Session To track views of embedded videos. 


Cookie Sharing with Third Parties 

Please note that we do not share the information collected by the cookies we set with any third party. 

Google, Facebook, and Oracle may share the information collected by the DoubleClick, Meta Pixel, and Add This cookies with third parties for the purposes of targeted advertising. Please visit their privacy policies for more information, using the links set out in the table above.  

Changing Your Cookie Preferences 

You can allow or block cookies by activating the setting on your browser that permits you to change the setting of all or some cookies. Please note that disabling cookies may affect the availability or functionality of our website. Most of the website will function normally, however, functions that rely on cookies such as the autofill/autocomplete feature when completing forms or payment information, will be disabled. 

If you would like more information on how to manage cookies on some popular browsers, please click on the links below.  

Policy Review and Amendments 

This policy will be reviewed annually, by the end of the first quarter (Q1), to ensure that it continues to meet the needs of The Society and its community. 

How to Contact Us  

If you have any questions about The Society’s Cookie Policy, please do not hesitate to contact us.  

Email us at: 

Call us: +1 410-670-7577 or +44 203 887 6132 

Or write to us at: The Ehlers-Danlos Society Headquarters, 447 Broadway, 2nd FL #670, New York, NY, 10013, USA or The Ehlers-Danlos Society Europe Office, Office 7, 35-37 Ludgate Hill, London, EC4M 7JN, United Kingdom 

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