Published: 15/05/2016 Tags: Ehlers-Danlos in the News

DL families help kids battle a disorder not seen from the outside

“You can’t be tired! You’re a kid!”

That’s what Connie Prellwitz, the mother of 7-year-old Emily Prellwitz, thought when Emily would get tired out unusually quickly during activity. Then she found out why when Emily was diagnosed with Ehlers-Danlos Syndrome just a few short months ago.
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After hearing of Emily’s diagnosis, Rossman Elementary school put Prellwitz in contact with Megan Smith, the mother of 8-year-old Greydan Smith, another child in Detroit Lakes who was diagnosed with EDS three years ago.

“I had no idea what it was,” Smith said, recalling when her own son was diagnosed three years ago.

“There’s not a lot of funding for it…there’s not a lot of education out there. It’s just very under the radar,” Smith said.

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