Accelerating groundbreaking research and access to clinical care for children, adults, and families affected by the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
As a monthly donor, you will play a vital role in accelerating pioneering research, development of treatments and therapies, and ensuring access to care for people and families struggling with the complexities of EDS and HSD.
Where your donation goes
90% of every donation goes directly to funding research and improving models of care, worldwide.
Increasing access for people through improved models of care
We know that around the world, what is desperately needed is early diagnosis, validation, and effective multidisciplinary care.
We are committed to increasing the availability of clinical services for people living with EDS and HSD, decreasing the diagnostic odyssey, and standardizing communication and care for those impacted by EDS and HSD. With your help, our aim is to develop improved models of care that will assist in the care of people worldwide, and ensure their pain and symptoms are treated.
Thousands are without treatments or relief. You can support the research to change their lives.
There remain many unanswered questions about the complexities of EDS and HSD. These questions include the best ways to treat symptoms, how the conditions develop and progress over time, the genetic causes behind hypermobile EDS and hypermobility spectrum disorders, the prevalence of all types of EDS and HSD, and the association between EDS, HSD, and conditions such as postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS).
Our aim is to award $1 million annually in research funding to researchers, revealing vital clues to beat EDS and HSD, and improve quality of life for all. Your donation will accelerate groundbreaking research and help us to bring about the first life-changing EDS and HSD treatments.
Give Monthly and Help Change Futures
As a monthly donor and a valued part of progressing change, you will receive a Research For Our Futures limited edition lapel pin, and a quarterly newsletter with the latest news on our work, progress, and the difference your donation is making on our mission.
Donate to The Ehlers-Danlos Society by check
As a 501c3 organization, your donation is a tax-deductible charitable contribution – EIN# 38-2813140. To donate by mail, send a check (payable to The Ehlers-Danlos Society) to 1732 1st Ave. #20373; New York, NY 10128; USA. Certain states require written disclosures for nonprofit organizations soliciting contributions. Please click here for individual state disclosures.
To donate by mail, send a check (payable to The Ehlers-Danlos Society) to Office 7; 35-37 Ludgate Hill; London, EC4M 7JN; UK.
As a registered charity in England and Wales (1180984), your donation is eligible for the Gift Aid scheme. If you are a UK taxpayer you can significantly increase the value of your gift at no extra cost!
Rest of the world
By donating online we can receive your gift quickly, but you can still send a check to help support our mission if you prefer. You can send a check to our registered addresses within either the USA or the UK listed above.
The Ehlers-Danlos Society uses The Network for Good platform to receive online donations and their details will appear on your credit card statement following a donation to our organization. Network for Good’s Donor Advised Fund is an accredited charity by the Better Business Bureau. At the current time we are unable to accept donations from persons located in Mississippi.