Dorothy Poppe

Dorothy Poppe

Bobby Jones CSF patient representative

Dorothy lives in Staten Island, New York.  She received a BA from New York University Gallatin Division after being selected for the performance dance program at the Juilliard School in New York City. She has 30 years of experience in the non-profit arena.

She has three children and one grandchild.  George, a PhD physics professor and researcher, was diagnosed with a Chiari malformation and syringomyelia in 1991 and had two surgeries in 1992. For the past 31 years, Dorothy has enjoyed teaching ballet and point classes for St. Clare Dance Program on Saturday mornings. As a member of the Executive Women’s Council, she is active with the Staten Island Economic Development Corporation (SIEDC).

“Our key to success is that the Bobby Jones Chiari & Syringomyelia Foundation has assembled a team of professionals that work together. We have established regional chapters that educate and support thousands of patients and their families, making these lectures and materials available to all through our website. In addition, Bobby Jones CSF has become known for our research symposia and colloquia that bring scientists, physicians, engineers, veterinarians and lay professionals together to ask questions and solve the problems in an effort to find a cure for CM, SM and related disorders. Bobby Jones CSF has established a brand new website to serve over 3,000,000 individuals globally.  In a few short years, we have grown from a small start-up charity to an international powerhouse for education, research and advocacy which patients, scientists and medical professional can rely on. I am proud to be part of an organization that attracts the caliber of professional colleagues who have joined Bobby Jones CSF and believe “Anything is possible!”

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