Dorothy Poppe

Dorothy Poppe

Executive Director CSF (USA)

Dorothy lives in Staten Island, New York and has three children – John is an attorney at Legal Aid Society, Mary works for Horizon Media, and George is a Research Fellow for the CUNY system and a physics PhD candidate in the Graduate Program. George was diagnosed with a Chiari malformation and syringomyelia in 1991 and had two surgeries in 1992. Her family also includes three furry friends, her dogs, Petey, Eddie and Buddy. For the past 28 years, Dorothy has enjoyed teaching ballet and point classes for St. Clare Dance Program on Saturday mornings. As a member of the Executive Women’s Council, she is active with the Staten Island Economic Development Corporation (SIEDC).

Dorothy received a Bachelor’s Degree from New York University Gallatin Division after being selected for the performance dance program at the Juilliard School in New York City. She has over 20 years of experience in the non-profit arena.

Dorothy is the executive director of the Chiari & Syringomyelia Foundation. “Our key to success is that the Chiari & Syringomyelia Foundation has assembled a team of professionals that work together. We have established 38 regional chapters that educate and support thousands of patients and their families, making these lectures and materials available to all through our website. In addition, CSF has become known for our research symposiums and colloquiums that bring scientists, physicians, engineers, veterinarians and lay professionals together to ask questions and solve the problems in an effort to find a cure for CM, SM and related disorders. CSF has established a research endowment and has already funded research grants and fellows. In a few short years, we have grown from a small start-up charity to a national powerhouse for education, research and advocacy which patients, scientists and medical professional can rely on. I am proud to be part of an organization that attracts the caliber of professional colleagues who have joined CSF and believe in our mission.”