The Ehlers-Danlos Society has partnered with the Greater Baltimore Medical Center (GBMC) to establish the EDS Center for Research & Clinical Care at GBMC’s Harvey Institute for Human Genetics. This premier EDS research and treatment facility opened in Baltimore on August 16, 2014, and provides comprehensive clinical care for patients, professional education for physicians, and cutting-edge research. It is a place where new treatment options for patients are being explored and where medical professionals can learn about the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
YOUR support of The Ehlers-Danlos Society Center is essential to its success. The minimum amount needed to operate is $250,000 per year. This covers only the basic operating expenses of this multidisciplinary clinic including: personnel, materials, equipment, and professional education. Your contribution will assist us in providing education, clinical care and research. Please help today.
The Ehlers-Danlos Society Center for Research & Clinical Care at GBMC’s Harvey Institute for Human Genetics focuses on the following:
Clinical Care. The Center provides comprehensive clinical care for patients with EDS and HSD. During the visit, patients are seen by a genetic counselor, Jennifer Billiet, a physician’s assistant, Rebecca Gluck, and Dr. Clair Francomano. It may be possible in some cases to coordinate the visit with other specialists in the area for people who are traveling a long distance to get here.
Professional Education. Since most medical professionals are unfamiliar with the disease and its treatment, the result is patients who are misunderstood, misdiagnosed and mistreated. On September 15, 2014, we held our first Physicians Conference, which marked the beginning of the educational program at the EDS Center. We have offered seminars and symposia at multiple professional conferences (including ACMG, ASHG, ASAP, CSF, and others). Our desire is to give medical professionals worldwide the opportunity to learn about EDS.
Research. With the assistance of The Ehlers-Danlos Society Medical and Scientific board.
To contact The Ehlers-Danlos Society Center or to make an appointment, please visit https://www.gbmc.org/adult-genetics.