3rd Annual CSF Disorders Symposium
Connective Tissue Syndromes and Manifestations of
Cerebrospinal Fluid Disorders of the Brain and Spine:
“If You Cannot Connect the Issues, Think of Connective Tissues”
Saturday, June 16, 2018
Warren Alpert Medical School
Providence, Rhode Island
Over 200 disorders impact connective tissue. Those are genetic disorders, such as Ehlers-Danlos syndrome, Marfan syndrome, and autoimmune disorders, such as lupus and scleroderma. Ehlers- Danlos syndromes (EDS), including the associated hypermobility spectrum disorders (HSDs), are the most commonly observed, and the neurological manifestations include effects on the cerebrospinal fluid circulation. This has been largely overlooked and poorly described.
In 2017, for the first time management and care guidelines have been produced for the co-morbidities that can occur within EDS and HSDs. Experts and physicians treating patients with EDS, more frequently and uniquely observe neurological manifestations that ought to be linked to the pathophysiology of deficient collagen, hypermobility, unstable vertebra and early disk disease, and an aroused immune system. All those deficiencies may cause structural and functional problems to the central nervous system.
The CSF symposium will discuss and advance the understanding of the above with focus on the most prevalent Ehlers-Danlos syndromes, and provide both clinical and translational evidence to the concept of central nervous and cerebrospinal fluid system manifestations of connective tissue syndromes based in imaging, pathological findings and results of pain, physical therapy and surgical interventions.
For more information, please click here to view or download a PDF flyer.
Ehlers-Danlos Syndrome Patient Symposium
December 8, 2017
9:00 am – 5:00 pm, NYIT Auditorium on Broadway
New York, NY
NOTE: This event is full. A LIVE STREAM will be available starting at 9:45 am on Friday, December 8. For optimum viewing, we advise that you minimize other streaming services on your wifi during this time. kaltura.com/tiny/k5eeb
Join NYIT for the Ehlers-Danlos Syndrome Patient Symposium at NYIT College of Osteopathic Medicine (NYITCOM). If you or a loved one suffers from Ehlers-Danlos Syndrome (EDS), you need to find a comprehensive treatment program that will empower you and improve your well-being. At this symposium, you’ll learn about treatment options for EDS, hear from experts in the field, and discover how EDS patients can improve their quality of life.
For questions, email email@example.com or call 516.686.7573. To R.S.V.P., click here.
For more information, please visit NYIT’s web site.
The ILC 5th Annual Ehlers-Danlos & Chronic Pain Conference
November 4 – 5, 2017
Fitting the Pieces Together and the
Importance of Multidisciplinary Access to Care
The ILC are pleased to invite you to the ILC Charitable Foundation Annual Ehlers-Danlos and Chronic Pain conference on Saturday, November 4th and Sunday, November 5th, 2017 at the Peter Gilgan Centre for Research and Learning, 686 Bay St, Toronto, ON M5G 0A4.
For more information, please visit The ILC Foundation’s web site.
EDS Wellness’ 2017 Physicians Integrative Learning Conference
June 10th & 11th, 2017
The Salamander Resort in Middleburg, VA
Kendra Neilsen Myles
EDS Wellness’ Integrative Physicians Learning Conference strives to promote an open-minded environment — one that opens doors to understanding and facilitates constructive discussions; thus, leading to improved quality of care and better patient outcomes.
***All medical specialties and healthcare providers welcome! CME credits available.***
Speakers’ presentations, conference workshops, and content is based on the most up-to-date diagnostic criteria and evidence-based integrative strategies, ensuring the highest possible standard of care for patients with chronic pain and multisystemic chronic illnesses.
The Physicians Learning Conference aims to equip medical professionals of all specialties, the medical information, and resources needed to ensure the proper diagnosis and care of patients with complex, chronic and often misunderstood medical conditions.
Healthcare providers will learn practical tools to help with the proper diagnosis and care of patients with chronic illnesses from top specialists in various medical specialties, such as Rheumatology, Cardiology, Genetics, Internal medicine, Oncology/Hematology, Psychiatry, Orthopedics, Physical Medicine and Rehabilitation, Functional Medicine, Pediatrics, Emergency Medicine, Allergy and Immunology, Neurology, Anesthesiology and Chronic Pain Management, Naturopathic Medicine, Nutrition, Physical Therapy and Biomechanics and more!
The 2017 Physicians Learning Conference will provide a unique opportunity for healthcare providers of all specialties and backgrounds to network, learn and openly discuss medical research, and focus on collaborative patient care.
Vascular EDS Conference, May 2017
Annabelle’s Challenge & EDS UK are hosting UK’s first Vascular EDS Conference in May 2017.
May 6-7, 2017
Village Hotel, Bury, Manchester UK
The aim of the conference is to provide medical professionals and patients the most up to date medical information about the treatment and management of vascular EDS. The event will also offer a unique opportunity for patients and families who are touched by vascular EDS to meet others with the condition, to share experiences and hopefully form lasting friendships.
Families will be most welcome at the event and we hope to be able to provide entertainment for the children, to allow parents to fully participate in the conference.
We are delighted to say that speakers and content is being provided by the EDS Diagnostic Services for complex cases in NHS Sheffield UK, ensuring the highest possible standard and most up-to-date information on vascular EDS.
More information will be released soon and we anticipate a quick uptake of tickets, so we suggest registering your interest to ensure you here about ticket availability at the soonest. To register your interest in tickets please visit our website.