EDS Conferences Around the World

These events are not run by The Ehlers-Danlos Society.
If you have an event you want listed on these pages, please use this form.

PhoenixEDS Medical Conference

CSF Disorders Symposium 2018

Saturday, October 20, 2018
9003 E Shea Blvd, Scottsdale, AZ 85260 US

 
Please join us for the first PhoenixEDS medical conference where you can hear from some of our amazing local medical professionals who have taken our zebra herd to another level.

Dr. David Saperstein, our keynote speaker will give an overall informational address regarding Ehlers-Danlos syndrome (EDS) and how we can better communicate our needs to the medical community. We will also have two exceptional physical therapists, Eric Bloom and Jeffery Petersen speaking as to the importance and benefits of the right PT. Joe Pongratz will provide an overall look at some of the durable medical equipment and braces that are available and how they can benefit those with EDS. Additional medical professionals will be added as they are confirmed.

A variety of vendors and exhibitors that support the needs of those with EDS and its comorbidities will also be in attendance.

There are a limited number of tickets available for this conference, so don’t miss out. The details for the conference costs are as follows:

The conference includes one day of speakers and a cold lunch buffet with water. Dairy, gluten and vegan options available. (please let us know in your registration if you need a special option). You may bring additional snacks or drinks.

For further information, contact PhoenixEDS at info@phoenixeds.org.

3rd Annual CSF Disorders Symposium

CSF Disorders Symposium 2018

Connective Tissue Syndromes and Manifestations of
Cerebrospinal Fluid Disorders of the Brain and Spine:
“If You Cannot Connect the Issues, Think of Connective Tissues”

Saturday, June 16, 2018
Warren Alpert Medical School
Providence, Rhode Island

 
Over 200 disorders impact connective tissue. Those are genetic disorders, such as Ehlers-Danlos syndrome, Marfan syndrome, and autoimmune disorders, such as lupus and scleroderma. Ehlers- Danlos syndromes (EDS), including the associated hypermobility spectrum disorders (HSDs), are the most commonly observed, and the neurological manifestations include effects on the cerebrospinal fluid circulation. This has been largely overlooked and poorly described.

In 2017, for the first time management and care guidelines have been produced for the co-morbidities that can occur within EDS and HSDs. Experts and physicians treating patients with EDS, more frequently and uniquely observe neurological manifestations that ought to be linked to the pathophysiology of deficient collagen, hypermobility, unstable vertebra and early disk disease, and an aroused immune system. All those deficiencies may cause structural and functional problems to the central nervous system.

The CSF symposium will discuss and advance the understanding of the above with focus on the most prevalent Ehlers-Danlos syndromes, and provide both clinical and translational evidence to the concept of central nervous and cerebrospinal fluid system manifestations of connective tissue syndromes based in imaging, pathological findings and results of pain, physical therapy and surgical interventions.

For more information, please click here to view or download a PDF flyer.

Ehlers-Danlos Syndrome Patient Symposium

Zebra Puzzle Pieces logo

December 8, 2017
9:00 am – 5:00 pm, NYIT Auditorium on Broadway
New York, NY

NOTE: This event is full. A LIVE STREAM will be available starting at 9:45 am on Friday, December 8. For optimum viewing, we advise that you minimize other streaming services on your wifi during this time. kaltura.com/tiny/k5eeb

Join NYIT for the Ehlers-Danlos Syndrome Patient Symposium at NYIT College of Osteopathic Medicine (NYITCOM). If you or a loved one suffers from Ehlers-Danlos Syndrome (EDS), you need to find a comprehensive treatment program that will empower you and improve your well-being. At this symposium, you’ll learn about treatment options for EDS, hear from experts in the field, and discover how EDS patients can improve their quality of life.

For questions, email eds@nyit.edu or call 516.686.7573. To R.S.V.P., click here.

For more information, please visit NYIT’s web site.

The ILC 5th Annual Ehlers-Danlos & Chronic Pain Conference

Zebra Puzzle Pieces logo

November 4 – 5, 2017
Fitting the Pieces Together and the
Importance of Multidisciplinary Access to Care

The ILC are pleased to invite you to the ILC Charitable Foundation Annual Ehlers-Danlos and Chronic Pain conference on Saturday, November 4th and Sunday, November 5th, 2017 at the Peter Gilgan Centre for Research and Learning, 686 Bay St, Toronto, ON M5G 0A4.

For more information, please visit The ILC Foundation’s web site.

EDS Wellness’ 2017 Physicians Integrative Learning Conference 

June 10th & 11th, 2017
The Salamander Resort in Middleburg, VA

Contact:
Kendra Neilsen Myles
Kendra@edswellness.org
(240) 687-7791

EDS Wellness’ Integrative Physicians Learning Conference strives to promote an open-minded environment — one that opens doors to understanding and facilitates constructive discussions; thus, leading to improved quality of care and better patient outcomes.

***All medical specialties and healthcare providers welcome! CME credits available.***

Speakers’ presentations, conference workshops, and content is based on the most up-to-date diagnostic criteria and evidence-based integrative strategies, ensuring the highest possible standard of care for patients with chronic pain and multisystemic chronic illnesses.

The Physicians Learning Conference aims to equip medical professionals of all specialties, the medical information, and resources needed to ensure the proper diagnosis and care of patients with complex, chronic and often misunderstood medical conditions.

Healthcare providers will learn practical tools to help with the proper diagnosis and care of patients with chronic illnesses from top specialists in various medical specialties, such as Rheumatology, Cardiology, Genetics, Internal medicine, Oncology/Hematology, Psychiatry, Orthopedics, Physical Medicine and Rehabilitation, Functional Medicine, Pediatrics, Emergency Medicine, Allergy and Immunology, Neurology, Anesthesiology and Chronic Pain Management, Naturopathic Medicine, Nutrition, Physical Therapy and Biomechanics and more!

The 2017 Physicians Learning Conference will provide a unique opportunity for healthcare providers of all specialties and backgrounds to network, learn and openly discuss medical research, and focus on collaborative patient care.

Click here for more info

Vascular EDS Conference, May 2017

Annabelle’s Challenge & EDS UK are hosting UK’s first Vascular EDS Conference in May 2017.

May 6-7, 2017
Village Hotel, Bury, Manchester UK

The aim of the conference is to provide medical professionals and patients the most up to date medical information about the treatment and management of vascular EDS. The event will also offer a unique opportunity for patients and families who are touched by vascular EDS to meet others with the condition, to share experiences and hopefully form lasting friendships.

Families will be most welcome at the event and we hope to be able to provide entertainment for the children, to allow parents to fully participate in the conference.

We are delighted to say that speakers and content is being provided by the EDS Diagnostic Services for complex cases in NHS Sheffield UK, ensuring the highest possible standard and most up-to-date information on vascular EDS.

More information will be released soon and we anticipate a quick uptake of tickets, so we suggest registering your interest to ensure you here about ticket availability at the soonest. To register your interest in tickets please visit our website.

Click here for more info

Wellaplaooza 2017

April 28-30, 2017
EDS Wellness’ 2017 Integrative Wellness Retreat
The Salamander Resort – Middleburg, VA

Contact:
info@wellapalooza.com
(240) 687-7791

Click here for more info