EDS ECHO Advocacy

EDS ECHO Advocacy Program

EDS ECHO

‘All Teach, All Learn’

A small number of spaces have become available for the next EDS ECHO Advocacy program commencing on October 20th, 2021. This program has been scheduled to be suitable for participants in Europe, Africa, Central and East Asia, and, Australasia. For more information on the program and how to apply, please see below.

We know that many of you want to know how to make a difference where you live, by raising awareness of EDS and HSD, and by forging change.

EDS ECHO Advocacy is a focused seven-week program to provide you with the tools needed to advocate effectively. The curriculum will cover:

  • What is an Advocate?
  • Public Speaking
  • How to present on EDS and HSD 101
  • Social Media
  • Fundraising
  • Political Awareness and Lobbying
  • Understanding the Research Process

This EDS ECHO program is designed to create active advocates around the world who are willing to help raise awareness of EDS and HSD. Successful candidates will be asked not to share or discuss their personal medical history or experiences, and instead to share their knowledge in a de-identified manner throughout.

Participants will be invited to share and present their “Advocacy Examples” throughout the program. Advocacy examples can include examples of the ways you have previously or would like to advocate for yourself or others, based on the subjects being covered in the curriculum.

This ECHO program is not designed to give advice on how best to navigate your condition or access care. For those wanting to receive this help and support please sign up for our ‘Ask the Helpline’ monthly support group where tips and tricks will be given and support and advice on how best to manage life with this condition. 

Help us to create a dazzling global army and achieve world-wide awareness—and inevitably, a better quality of life for all who suffer from these conditions.

Our strength begins with hope, our hope begins with you.

A small number of spaces have become available for the next EDS ECHO Advocacy program commencing on October 20th, 2021. This program has been scheduled to be suitable for participants in Europe, Africa, Central and East Asia, and, Australasia.

EDS ECHO Advocacy – Upcoming Program Schedule:

SessionProgram: EDS ECHO Advocacy (PP9)Date & Time: Wednesdays 1:00pm – 2:30pm  London (UK Time)
1

Advocacy and Breaking Down Barriers

Oct 20, 2022

2

Public Speaking

Oct 27, 2022

3

How to Present Information on EDS and HSD 101

Nov 3, 2022

4

Fundraising

Nov 10, 2022

5

Political Awareness and Lobbying

Nov 17, 2022

6

Understanding the Research Process

Nov 24, 2022

7

Social Media

Dec 1, 2022

To view the previous recordings of Advocacy ECHO please click the relevant program link below.

Please note, the program content is only available to those who are participating in the program. You will need the password to access these resources.