EDS ECHO Clinicians Programs

About EDS ECHO Clinicians

The EDS ECHO Clinicians program is a free program for healthcare professionals worldwide, across all disciplines who want to improve their ability to care for people with EDS, HSD, and associated symptoms and conditions.

The programs consist of expert presentations and case-based interactive sessions delivered virtually via the Zoom platform. Each session is 1hr 30 minutes in length. 

Participants are encouraged to share their cases and questions in the sessions and are guided to further educational materials and support.

There are three EDS ECHO Clinicians programs:

The program runs over 10 sessions, and covers the following subjects:

  • Diagnosis of hEDS and HSD
  • Diagnosing rare types of EDS
  • Autonomic dysfunction
  • ENT and Maxillofacial concerns
  • Gastrointestinal concerns
  • Inflammation and mast cell issues
  • Musculoskeletal complications and pain
  • Neurological complications
  • Neurodevelopmental disorders
  • Orthopedic Medicine
  • Psychiatric disorders
  • Urogynaecology, pelvic floor, and pregnancy

Participants who are accepted into the program are asked to attend as much of the program as possible to get the most out of their place.

All participants are encouraged to share their cases and questions in the sessions and are guided to further educational material and support. CME/CEU/CE credits or a certificate of attendance are available to healthcare professionals at no charge. Credits are awarded at 1 per 60 minutes of live session activity.

EDS ECHO Clinicians North America (A) – Upcoming Program Schedule:

 

Session EDS ECHO Clinicians North America (10A)
Clinical Lead:
Dr. Clair Francomano

Date & Time:
Thursdays at 5:00pm – 6:30pm
Eastern Time (US & Canada)

1 ‘Introduction, and Making a Diagnosis. Part 1 – hEDS and HSD’
Guest Presenter: Dr. Clair Francomano
September 8, 2022
2 ‘EDS Diagnosis. Part 2 – Rare Types’
Guest Presenter: Dr. Peter Byers
September 22, 2022
3 ‘Head and Neck Musculoskeletal Complications and Pain’
Guest Presenter: Dr. Leslie Russek
October 6, 2022
4 ‘Neurological Complications’
Guest Presenter: Dr. Fraser Henderson
October 13, 2022
5 ‘Gastrointestinal Concerns’
Guest Presenter: Dr. Katja Kovacic
October 20, 2022
6 ‘Inflammation and Mast Cell Issues’
Guest Presenter: Dr. Anne Maitland
November 3, 2022
7 ‘Obstetrics and Gynecology’
Guest Presenter: Dr. Natalie Blagowidow
November 10, 2022
8 ‘Pain Management’
Guest Presenter: Dr. Helen Cohen
November 17, 2022
9 ‘Orthostatic Intolerance and Autonomic Dysfunction’
Guest Presenter: Dr. Peter Rowe
November 10, 2022
10 ‘Orthopeadic Medicine’
Guest Presenter: Dr. Cathy Raggio
November 10, 2022

PLEASE NOTE – Session topics, guest speakers and dates are subject to change.

Participants who are accepted into the program are asked to attend as much of the program as possible to get the most out of their place.

All participants are encouraged to share their cases and questions in the sessions and are guided to further educational material and support. CME/CEU/CE credits or a certificate of attendance are available to healthcare professionals at no charge. Credits are awarded at 1 per 60 minutes of live session activity.

EDS ECHO Clinicians UK/Europe (B) – Upcoming Program Schedule:

 

Session EDS ECHO Clinicians UK/Europe (10B)
Clinical Lead:
Dr. Alan Hakim

Date & Time:
Thursdays at 5:00pm – 6:30pm London (UK Time) /
12:00pm – 1:30pm Eastern Time (US & Canada)*

1 ‘Introduction, and Making a Diagnosis: Part 1 – hEDS and HSD’
Guest Presenter: Dr. Alan Hakim
September 1, 2022
2 ‘Introduction, and Making a Diagnosis: Part 2 – Rare Types’
Guest Presenter: Prof. Fransiska Malfait
September 8, 2022
3 ‘Musculoskeletal Complications and Pain’
Guest Presenter: Dr. Jane Simmonds
September 22, 2022
4 ‘Neurological Complications’
Guest Presenter: TBC
October 6, 2022
5 ‘‘Psychiatry and Neurodiversity’
Guest Presenter: Dr. Alan Hakim
October 13, 2022
6 ‘Gastrointestinal Concerns’
Guest Presenter: Prof. Qasim Aziz
October 20, 2022
7 ‘Cardiovascular Complications and Autonomic Dysfunction’
Guest Presenter: Prof. Chris Mathias
November 3, 2022
8 ‘Urological Concerns in EDS and HSD’
Guest Presenter: Prof. Vik Khullar
November 10, 2022
9 ‘Orthopedic Medicine’
Guest Presenter: Sophie Roberts
November 17, 2022
10 ‘Pregnancy in EDS and HSD’
Guest Presenter: Dr Sally Pezaro
December 1, 2022

PLEASE NOTE – Session topics, guest speakers and dates are subject to change.

*Except October 20th: 6:00pm – 7:30pm London (UK Time) / 1:00pm – 2:30pm Eastern Time (US & Canada)
*Except November 3rd: 5:00pm – 6:30pm London (UK Time) / 1:00pm – 2:30pm Eastern Time (US & Canada) – [Due to BST clock changes]

Participants who are accepted into the program are asked to attend as much of the program as possible to get the most out of their place.

All participants are encouraged to share their cases and questions in the sessions and are guided to further educational material and support. CME/CEU/CE credits or a certificate of attendance are available to healthcare professionals at no charge. Credits are awarded at 1 per 60 minutes of live session activity.

EDS ECHO Clinicians Australasia (C) – Upcoming Program Schedule:

Program: EDS ECHO Clinicians Australasia (1C)
Clinical Lead: Dr. Fraser Burling
Thursdays at:
4:00pm – 5:30pm Singapore (SGT)
6:00pm – 7:30pm Sydney (AEST)
8:00pm – 9:30pm Auckland (NZST)
 Session 1 – Hypermobility – Assessment and Management May 5, 2022
Session 2 – HSD and Hypermobile EDS May 12, 2022
 Session 3 – Rarer Types of EDS and the Differential Diagnosis June 2, 2022
 Session 4 – Cardiovascular Dysautonomia June 16, 2022
 Session 5 – Gastroenterological Disorders in EDS and HSD June 23, 2022
 Session 6 – Role of Osteopathy in Hypermobility July 7, 2022
 Session 7 – Musculoskeletal Therapies in EDS and HSD July 14, 2022
 Session 8 – Open Discussion – Participant Topics July 21, 2022

PLEASE NOTE – Session dates and topics are subject to change.

Please visit your preferred time zone converter to confirm the correct start time in your location.  

EDS ECHO Clínico en Español – Calendario del programa:

Sesión EDS ECHO Clínico en Español (1D)
Dirigido por:
Dra. Joanna Delgado Falcon Cooper y la Dra. Patricia Grether

Fecha y Hora:
Miércoles 5:00pm – 6:30pm (CDMX)

1

Tejido conectivo. Estructura y función

Ponente: Dr. Joaquín Carrillo Farga

7 de septiembre, 2022
2

Síndrome de Ehlers Danlos hipermóvil y el Trastorno del Espectro de Hipermovilidad

Ponente: Dra. Joanna Delgado Falcon Cooper

21 de septiembre, 2022
3

Síndromes de Ehlers Danlos poco comunes

Ponente: Patricia Grether González

5 de octubre, 2022
4

Síndrome de Ehlers Danlos hipermóvil y neuropsiquiatría

Ponente: Dr. Antonio Bulbena Vilarrasa

19 de octubre, 2022
5

Resignificando el SED

Ponente: Marianna Delgado Falcon Cooper

9 de noviembre, 2022
6

Disautonomía en niños y adolescentes

Ponente: Dr. Roberto Richheimer Wohlmuth

16 de noviembre, 2022
7

Ortopedia en el SED

Ponente: Dra. Ana Serrano Ardila

30 de noviembre, 2022
8

Trastornos por activación de células mastocíticas

Ponente: Bill Reed, Dra. Isabel Brock, Dra. Anne Maitland

7 de diciembre, 2022

Tenga en cuenta que las fechas y los temas de las sesiones pueden cambiar.

Disclaimer: Written and text resources are translations of the original in English for information purposes only, translated by volunteers.
In case of a discrepancy, the English original will prevail.

Please note, the program content is only available to those who are participating in the program. You will need the password to access these resources.

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