About EDS ECHO Community Leaders & Educators
The EDS ECHO Community Leaders & Educators program explores ways participants can better teach and support those living with a type of EDS or HSD. This program is perfect for support group and organization leaders as well as others who strive to educate our community about how to feel and function as well as they can.
The format of most sessions will include didactic learning; community members describing the session topics in real world situations; a Q&A open discussion about the topic; and, break out room learning exercises to gain skills related to the topic of the session. Participants who attend five or more sessions will receive a certificate of attendance at the end of the program.
The curriculum will cover the following subjects:
- Session 1: Teaching Basics
- Session 2: Effective Doctor Appointments
- Session 3: Advocating for Yourself and Others
- Session 4: Starting and Running a Support Group
- Session 5: Support and Education on Social Media
- Session 6: Conflict Resolution
- Session 7: How to Find Accurate, Reputable Information
- Session 8: How to Answer Questions and be Supportive
Help us to create a dazzling global army of Community Leaders and Educators – and inevitably, a better quality of life for all who suffer from these conditions.
Our strength begins with hope, our hope begins with you.
|Program: EDS ECHO Community Leaders & Educators (CLE3)||Program Facilitators: Shani Weber and Rebecca Gluck|
Date & Time: Wednesdays at 12:00pm – 1:30pm Eastern Time (US & Canada) / 5:00pm – 6.30pm London (UK Time)
|Session 1 – Teaching Basics||October 19, 2022|
|Session 2 – Effective Doctor Appointments||October 26, 2022|
|Session 3 – How to Advocate for Yourself and Others||November 2, 2022|
|Session 4 – Starting and Running a Support Group||November 9, 2022|
|Session 5 – Support and Education on Social Media||November 16, 2022|
|Session 6 – Conflict Resolution||November 30, 2022|
|Session 7 – How to Find Accurate, Reputable Information||December 7, 2022|
|Session 8 – How to Answer Questions and Be Supportive||December 14, 2022|
PLEASE NOTE – There are a maximum of 80 places available for this program. Session dates and topics are subject to change.
Click here to view the previous EDS ECHO Community Leaders & Educators sessions.
Please note, the program content is only available to those who are participating in the program. You will need the password to access these resources.