EDS ECHO Community Leaders and Educators

Join The EDS ECHO Community Leaders & Educators

EDS ECHO

‘All Teach, All Learn’

The EDS ECHO Community Leaders & Educators program explores ways participants can better teach and support those living with a type of EDS or HSD. This program is perfect for support group and organization leaders as well as others who strive to educate our community about how to feel and function as well as they can. 

The program is led by Shani Weber and Rebecca Gluck and takes place over 8 sessions. Each session is 1hr 30 minutes in length and uses the Zoom platform. 

The format of most sessions will include didactic learning; community members describing the session topics in real world situations; a Q&A open discussion about the topic; and, break out room learning exercises to gain skills related to the topic of the session. Participants who attend five or more sessions will receive a certificate of attendance at the end of the program.

The curriculum will cover the following subjects: 

  • Session 1: Teaching Basics
  • Session 2: Effective Doctor Appointments
  • Session 3: Advocating for Yourself and Others
  • Session 4: Starting and Running a Support Group
  • Session 5: Support and Education on Social Media
  • Session 6: Conflict Resolution
  • Session 7: How to Find Accurate, Reputable Information
  • Session 8: How to Answer Questions and be Supportive 

Help us to create a dazzling global army of Community Leaders and Educators – and inevitably, a better quality of life for all who suffer from these conditions. 

Our strength begins with hope, our hope begins with you. 

EDS ECHO Community Leaders & Educators – Upcoming Program Schedule:

 Program: EDS ECHO Community Leaders & Educators (CLE1)Program Facilitators: Shani Weber and Rebecca Gluck
Date & Time: Wednesdays at 12:00pm – 1:30pm Eastern Time (US & Canada)
Session 1 – Teaching BasicsJanuary 5, 2022
Session 2 – Effective Doctor AppointmentsJanuary 12, 2022
Session 3 – How to Advocate for Yourself and OthersJanuary 19, 2022
Session 4 – Starting and Running a Support GroupJanuary 26, 2022
Session 5 – Support and Education on Social MediaFebruary 2, 2022
Session 6 – Conflict ResolutionFebruary 9, 2022
Session 7 – How to Find Accurate, Reputable InformationFebruary 16, 2022
Session 8 – How to Answer Questions and Be SupportiveFebruary 23, 2022


PLEASE NOTE – There are a maximum of 80 places available for this program. Session dates and topics are subject to change.

 Program: EDS ECHO Community Leaders & Educators (CLE2)Program Facilitators: Shani Weber and Rebecca Gluck
Date & Time: Wednesdays at 1:00pm – 2:30pm London (UK Time)
Session 1 – Teaching BasicsMay 4, 2022
Session 2 – Effective Doctor AppointmentsMay 11, 2022
Session 3 – How to Advocate for Yourself and OthersMay 18, 2022
Session 4 – Starting and Running a Support GroupMay 25, 2022
Session 5 – Support and Education on Social MediaJune 1, 2022
Session 6 – Conflict ResolutionJune 8, 2022
Session 7 – How to Find Accurate, Reputable InformationJune 15, 2022
Session 8 – How to Answer Questions and Be SupportiveJune 22, 2022


PLEASE NOTE – There are a maximum of 80 places available for this program. Session dates and topics are subject to change.

This program (CLE2) has been scheduled to be suitable for participants in Europe, Africa, Central and East Asia, and, Australasia. 

 Program: EDS ECHO Community Leaders & Educators (CLE3)Program Facilitators: Shani Weber and Rebecca Gluck
Date & Time: Wednesdays at 12:00pm – 1:30pm Eastern Time (US & Canada)
Session 1 – Teaching BasicsOctober 19, 2022
Session 2 – Effective Doctor AppointmentsOctober 26, 2022
Session 3 – How to Advocate for Yourself and OthersNovember 2, 2022
Session 4 – Starting and Running a Support GroupNovember 9, 2022
Session 5 – Support and Education on Social MediaNovember 16, 2022
Session 6 – Conflict ResolutionNovember 30, 2022
Session 7 – How to Find Accurate, Reputable InformationDecember 7, 2022
Session 8 – How to Answer Questions and Be SupportiveDecember 14, 2022


PLEASE NOTE – There are a maximum of 80 places available for this program. Session dates and topics are subject to change.

Click here to view the previous EDS ECHO sessions.

Please note, the program content is only available to those who are participating in the program. You will need the password to access these resources.