This is a free to join virtual program delivered via the Zoom platform for those wishing to advocate for patients with EDS and HSD.
Please complete the application form below to apply for a place on the EDS ECHO Community Leaders & Educators (CLE1) Program.
EDS ECHO Community Leaders & Educators (CLE1) – Program Details:
The EDS ECHO Community Leaders program explores ways participants can better teach and support those living with a type of EDS or HSD. This program is perfect for support group and organization leaders as well as others who strive to educate and support the community.
The format of most sessions will include didactic learning; community members describing the session topics in real-world situations; a Q&A open discussion about the topic; and, break-out room learning exercises to gain skills related to the topic of the session. Participants who attend five or more sessions will receive a certificate of attendance at the end of the program.
|Program: EDS ECHO Community Leaders & Educators (CLE1)||Program Facilitators: Shani Weber and Rebecca Gluck|
Date & Time: Wednesdays at 12:00pm – 1:30pm Eastern Time (US & Canada)
|Session 1 – Teaching Basics||January 5, 2022|
|Session 2 – Effective Doctor Appointments||January 12, 2022|
|Session 3 – How to Advocate for Yourself and Others||January 19, 2022|
|Session 4 – Starting and Running a Support Group||January 26, 2022|
|Session 5 – Support and Education on Social Media||February 2, 2022|
|Session 6 – Conflict Resolution||February 9, 2022|
|Session 7 – How to Find Accurate, Reputable Information||February 16, 2022|
|Session 8 – How to Answer Questions and Be Supportive||February 23, 2022|
PLEASE NOTE – There are a maximum of 80 places available for this program. Session dates and topics are subject to change.
The program content is currently only presented in English.
This is a virtual program, you will be sent a link to join the sessions which are run via the zoom platform. Please visit https://www.worldtimebuddy.com, or your preferred time zone converter to confirm the correct start time in your location. Once signed up, we ask that you attend a minimum of 5 out of the 10 sessions. You can catch up with the sessions you miss by watching our password protected recordings online. For all queries regarding EDS ECHO, please email our EDS ECHO Program Coordinator.
Help us create a dazzling global army and achieve world-wide awareness – and inevitably, a better quality of life for all who suffer from these conditions.
For more information, visit our dedicated EDS ECHO Community Leaders & Educators web page.