EDS ECHO Community Leaders & Educators Program Application

Join The EDS ECHO Community Leaders & Educators

This is a free to join virtual program delivered via the Zoom platform for those wishing to advocate for patients with EDS and HSD.

Please complete the application form below to apply for a place on the EDS ECHO Community Leaders & Educators (CLE1) Program.

EDS ECHO Community Leaders & Educators (CLE1) – Program Details:

The EDS ECHO Community Leaders program explores ways participants can better teach and support those living with a type of EDS or HSD. This program is perfect for support group and organization leaders as well as others who strive to educate and support the community. 

The program is led by Shani Weber and Rebecca Gluck and takes place over 8 sessions. Each session is 1hr 30 minutes in length and uses the Zoom platform. 

The format of most sessions will include didactic learning; community members describing the session topics in real-world situations; a Q&A open discussion about the topic; and, break-out room learning exercises to gain skills related to the topic of the session. Participants who attend five or more sessions will receive a certificate of attendance at the end of the program.

 Program: EDS ECHO Community Leaders & Educators (CLE1)Program Facilitators: Shani Weber and Rebecca Gluck
Date & Time: Wednesdays at 12:00pm – 1:30pm Eastern Time (US & Canada)
Session 1 – Teaching BasicsJanuary 5, 2022
Session 2 – Effective Doctor AppointmentsJanuary 12, 2022
Session 3 – How to Advocate for Yourself and OthersJanuary 19, 2022
Session 4 – Starting and Running a Support GroupJanuary 26, 2022
Session 5 – Support and Education on Social MediaFebruary 2, 2022
Session 6 – Conflict ResolutionFebruary 9, 2022
Session 7 – How to Find Accurate, Reputable InformationFebruary 16, 2022
Session 8 – How to Answer Questions and Be SupportiveFebruary 23, 2022


PLEASE NOTE – There are a maximum of 80 places available for this program. Session dates and topics are subject to change.

The program content is currently only presented in English.

This is a virtual program, you will be sent a link to join the sessions which are run via the zoom platform. Please visit https://www.worldtimebuddy.com, or your preferred time zone converter to confirm the correct start time in your location. Once signed up, we ask that you attend a minimum of 5 out of the 10 sessions. You can catch up with the sessions you miss by watching our password protected recordings online. For all queries regarding EDS ECHO, please email our EDS ECHO Program Coordinator.

Help us create a dazzling global army and achieve world-wide awareness – and inevitably, a better quality of life for all who suffer from these conditions.

For more information, visit our dedicated EDS ECHO Community Leaders & Educators web page.

Please complete and submit the following information to apply for a place on the EDS ECHO Community Leaders & Educators (CLE1) program: