Relive the EDS ECHO Summit Series: Allergy and Immunology Complications Event
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We are proudly working to provide global learning conferences on the multisystemic nature of the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and comorbid conditions.
Our aim is to reduce the time to diagnosis, ensure validation and recognition for the lived experiences of those affected by EDS and HSD, and for all to be able to access effective treatment and care, worldwide.
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Event Agenda
TIME
|
PRESENTATION TITLE
|
SPEAKER
|
| 8:45 AM – 8:55 AM |
Welcome to the event |
Lara Bloom
President and CEO
The Ehlers-Danlos Society |
| SESSION 1 |
THE IMMUNE SYSTEM |
| 8:55 AM – 8:58 AM |
Welcome to Session 1 – The Immune System |
Dr. Alan Hakim
Director of Education
The Ehlers-Danlos Society |
| 8:58 AM – 9:45 AM |
Our Immune System |
Dr. Anne Maitland
Allergy/Immunology Consultant
American Well |
| 9:45 AM – 10:00 AM |
Live Q&A |
|
| SESSION 2 |
MAST CELL ACTIVATION AND HISTAMINE INTOLERANCE |
| 10:10 AM – 10:15 AM |
Welcome to Session 2 – Mast Cell Activation and Histamine Intolerance |
Dr. Anne Maitland
Allergy/Immunology Consultant
American Well |
| 10:15 AM – 10:50 AM |
Allergy, Intolerances, Mechanisms and Management |
Dr. Matthew Giannetti |
| 10:50 AM – 11:21 AM |
Disorders of Mast Cells and Mast Cell Activation |
Dr. Mariana Castells
Director Desensitization Center, Professor in Medicine
Harvard Medical School |
| 11:21 AM – 11:46 AM |
Hereditary Alpha Tryptasemia (HAT) |
Dr. Jonathan J. Lyons |
| 11:46 AM – 12:07 PM |
Live Q&A |
|
| SESSION 3 |
AUTOIMMUNE RHEUMATIC DISEASE |
| 12:30 PM – 12:33 PM |
Welcome to Session 3 – Autoimmune Rheumatic Disease |
Dr. Clair Francomano |
| 12:33 PM – 12:58 PM |
Immune dysfunction in Hypermobile Spectrum Disorder and Ehlers-Danlos
Syndromes: Beyond Mast Cell Activation Disease |
Dr. Anne Maitland
Allergy/Immunology Consultant
American Well |
| 12:58 PM – 1:19 PM |
Autoimmune Rheumatic Disease and Ehlers-Danlos Syndrome |
Dr. Clair Francomano |
| 1:19 PM – 1:50 PM |
Live Q&A |
| SESSION 4 |
THE DIAGNOSTIC JOURNEY |
| 2:00 PM – 2:03 PM |
Welcome to Session 4 – The Diagnostic Journey |
Courtney Rabb |
| 2:03 PM – 2:13 PM |
How to Talk to Your Physician and Make the Most Out of Your Doctor
Appointments! |
Valerie Slee
Chair, Board of Directors
The Mast Cell Disease Society, Inc. |
| 2:13 PM – 2:30 PM |
Coping with the Challenges and Fears of MCAS |
Courtney Rabb |
| 2:30 PM – 3:00 PM |
Live Q&A |
| SESSION 5 |
GI AND UROGYNECOLOGICAL DISEASE |
| 3:40 PM – 3:42 PM |
Welcome to Session 5 – GI and Urogynecological Disease |
Dr. Alan Hakim
Director of Education
The Ehlers-Danlos Society |
| 3:42 PM – 3:52 PM |
Living with hEDS, MCAS & a low histamine diet |
Kate Robinson |
| 3:52 PM – 4:21 PM |
Allergy and Immunology- Gastrointestinal Manifestations of Mast Cell Disorders |
Dr. Matthew Hamilton |
| 4:21 PM – 4:53 PM |
Inflammation, Pain, and Urogynaecological disorders |
Prof. Vik Khullar |
| 4:53 PM – 5:25 PM |
Live Q&A |
| 5:25 PM – 5:30 PM |
Close & Goodbye |
Lara Bloom
President and CEO
The Ehlers-Danlos Society |
