Relive the EDS ECHO Summit Series: Allergy and Immunology Complications Event

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We are proudly working to provide global learning conferences on the multisystemic nature of the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and comorbid conditions.

Our aim is to reduce the time to diagnosis, ensure validation and recognition for the lived experiences of those affected by EDS and HSD, and for all to be able to access effective treatment and care, worldwide.

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Event Agenda

TIME

PRESENTATION TITLE

SPEAKER

8:45 AM – 8:55 AMWelcome to the eventLara Bloom
President and CEO
The Ehlers-Danlos Society
SESSION 1THE IMMUNE SYSTEM
8:55 AM – 8:58 AMWelcome to Session 1 – The Immune SystemDr. Alan Hakim
Director of Education
The Ehlers-Danlos Society
8:58 AM – 9:45 AMOur Immune SystemDr. Anne Maitland
Allergy/Immunology Consultant
American Well
9:45 AM – 10:00 AMLive Q&A
SESSION 2MAST CELL ACTIVATION AND HISTAMINE INTOLERANCE
10:10 AM – 10:15 AMWelcome to Session 2 – Mast Cell Activation and Histamine IntoleranceDr. Anne Maitland
Allergy/Immunology Consultant
American Well
10:15 AM – 10:50 AMAllergy, Intolerances, Mechanisms and ManagementDr. Matthew Giannetti
10:50 AM – 11:21 AMDisorders of Mast Cells and Mast Cell ActivationDr. Mariana Castells
Director Desensitization Center, Professor in Medicine
Harvard Medical School
11:21 AM – 11:46 AMHereditary Alpha Tryptasemia (HAT)Dr. Jonathan J. Lyons
11:46 AM – 12:07 PMLive Q&A
SESSION 3AUTOIMMUNE RHEUMATIC DISEASE
12:30 PM – 12:33 PMWelcome to Session 3 – Autoimmune Rheumatic DiseaseDr. Clair Francomano
12:33 PM – 12:58 PMImmune dysfunction in Hypermobile Spectrum Disorder and Ehlers-Danlos
Syndromes: Beyond Mast Cell Activation Disease
Dr. Anne Maitland
Allergy/Immunology Consultant
American Well
12:58 PM – 1:19 PMAutoimmune Rheumatic Disease and Ehlers-Danlos SyndromeDr. Clair Francomano
1:19 PM – 1:50 PMLive Q&A
SESSION 4THE DIAGNOSTIC JOURNEY
2:00 PM – 2:03 PMWelcome to Session 4 – The Diagnostic JourneyCourtney Rabb
2:03 PM – 2:13 PMHow to Talk to Your Physician and Make the Most Out of Your Doctor
Appointments!
Valerie Slee
Chair, Board of Directors
The Mast Cell Disease Society, Inc.
2:13 PM – 2:30 PMCoping with the Challenges and Fears of MCASCourtney Rabb
2:30 PM – 3:00 PMLive Q&A
SESSION 5GI AND UROGYNECOLOGICAL DISEASE
3:40 PM – 3:42 PMWelcome to Session 5 – GI and Urogynecological DiseaseDr. Alan Hakim
Director of Education
The Ehlers-Danlos Society
3:42 PM – 3:52 PMLiving with hEDS, MCAS & a low histamine dietKate Robinson
3:52 PM – 4:21 PMAllergy and Immunology- Gastrointestinal Manifestations of Mast Cell DisordersDr. Matthew Hamilton
4:21 PM – 4:53 PMInflammation, Pain, and Urogynaecological disordersProf. Vik Khullar
4:53 PM – 5:25 PMLive Q&A
5:25 PM – 5:30 PMClose & GoodbyeLara Bloom
President and CEO
The Ehlers-Danlos Society

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