EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes

Rarer Types of Ehlers-Danlos syndromes

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EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes

May 29, 2021

Scientific Chairs: Johannes Zschocke, Innsbruck and Fransiska Malfait, Ghent.
Local organizing committee: Johannes Zschocke, Rebekka Grossner and Ines Kapferer-Seebacher, Innsbruck.

Join us for an EDS ECHO Summit Series virtual event focused on the Rarer Types of Ehlers-Danlos Syndromes on May 29, 2021. This event will cover the most up-to-date research, management information, and community experiences on: 

  • Arthrochalasia EDS (aEDS)
  • Brittle Cornea Syndrome (BCS)
  • Cardiac-valvular EDS (cvEDS)
  • Classical-like EDS (clEDS)
  • Dermatosparaxis EDS (dEDS)
  • Kyphoscoliotic EDS (kEDS)
  • Musculocontractural EDS (mcEDS)
  • Myopathic EDS (mEDS)
  • Periodontal EDS (pEDS)
  • Spondylodysplastic EDS (spEDS)

5 CME/CEU/CE credits are available for healthcare professionals to claim for sessions attended live during this event.

We are delighted to be offering live, simultaneous translations during this event from English (original language) to French, German, Spanish and Japanese.

This event is suitable for the EDS community, their families,  caregivers, and healthcare professionals. The conference will take place from 08:45 AM – 3:00 PM Eastern Daylight Time.
(Please use the converter world time buddy to find the correct times in your location)

The conference will take place online via Zoom Webinar. If you have questions or if you would be interested in sharing your experiences as part of our Community Voices segment, please email [email protected].

Please note, this event will not cover vascular Ehlers-Danlos syndrome (vEDS) or classical EDS (cEDS). Please click here to learn more about our dedicated 2021 virtual conference days for vEDS and cEDS.

Registrations for our EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes are now open!

Please follow the community or healthcare professionals sign up buttons below to sign up to our EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes event.

Thanks to the generosity of donors, The Ehlers-Danlos Society will be providing a number of scholarships in 2021.

Registration scholarships for virtual events include access to the event app and all privileges of a full paying attendee.

Listen in your own language

English (Original Language), French, German, Spanish and Japanese.

Making our conferences and resources more accessible worldwide is a long-term goal that we have to continue spreading awareness, and we hope to be able to offer an even larger range of translation services at future conferences. 


Sponsorships are available for this conference; please see our prospectus and commitment form, or contact the development team at [email protected]

In support of improving patient care, Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.  

Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards of Commercial Support, requires anyone who is 
in a position to control the content of an activity discloses all relevant financial relationships they have had within the last 12 months with a commercial interest related to the content of the activity. The Planners and Presenters of this activity disclose that they have no financial relationships with any commercial interest. Professor Lara Bloom, Stacey Simmonds, Sacha Aziz, Prof Fransiska Malfait, Dr. Johannes Zschocke, Dr. Serwet Demidras, Dr. Anthony Vandersteen, Dr. Marianne Rohrbach, Dr. Roberto Mendoza-Londono, Dr. Tomoki Kosho, Dr. Fleur Van Dijk, Ines Kapferer-Seebacher, Dr. Ulrike Lepperdinger.

Supporting Sponsors

Lipedema Foundation

Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms that occurs almost exclusively in women. It is a common but underrecognized disorder. Lipedema may cause pain, swelling, and easy bruising and be accompanied by an unusual texture within the fat that can feel like rice, peas, or walnuts beneath the surface of the skin.  

At the Lipedema Foundation, we support collaborative research that addresses the basic biology, genetics, and epidemiology of lipedema with a mission to define, diagnose and develop treatments. 

Please visit our website lipedema.org to learn more about the Lipedema Foundation. 

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