EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes

EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes

May 29, 2021

Join us for an EDS ECHO Summit Series virtual event focused on the Rarer Types of Ehlers-Danlos Syndromes on May 29, 2021. This event will cover the most up-to-date research, management information, and community experiences on: 

  • Arthrochalasia EDS (aEDS)
  • Brittle Cornea Syndrome (BCS)
  • Cardiac-valvular EDS (cvEDS)
  • Classical-like EDS (clEDS)
  • Dermatosparaxis EDS (dEDS)
  • Kyphoscoliotic EDS (kEDS)
  • Musculocontractural EDS (mcEDS)
  • Myopathic EDS (mEDS)
  • Periodontal EDS (pEDS)
  • Spondylodysplastic EDS (spEDS)

We are delighted to be offering live translations during this event in English (original language), French, German, Spanish and Japanese. 

The agenda will be announced soon. This event is suitable for the EDS community, their families,  caregivers, and healthcare professionals. The conference will take place from 08:45 AM – 3:00 PM Eastern Daylight Time.
(Please use the converter world time buddy to find the correct times in your location)

The conference will take place online via Zoom Webinar. If you have questions or if you would be interested in sharing your experiences as part of our Community Voices segment, please email events@ehlers-danlos.com.

Please note, this event will not cover vascular Ehlers-Danlos syndrome (vEDS) or classical EDS (cEDS). Please click here to learn more about our dedicated 2021 virtual conference days for vEDS and cEDS.

Registrations for our EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes are now open!

Please follow the community or healthcare professionals sign up buttons below to sign up to our EDS ECHO Event Series: Rarer Types of Ehlers-Danlos Syndromes event.

Listen in your own language

English (Original Language), French, German, Spanish and Japanese.

Making our conferences and resources more accessible worldwide is a long-term goal that we have to continue spreading awareness, and we hope to be able to offer an even larger range of translation services at future conferences. 


Sponsorships are available for this conference; please see our prospectus and commitment form, or contact the development team at giving@ehlers-danlos.com

We are happy to be able to receive donations from all over the world and solicit funds in the US states of WA, ID, NV, UT, AZ, WY, MT, ND, SD, NE, OK, TX, IA, MO, LA, SC, DE, RI, VT, and ME.