Project ECHO®
The Ehlers-Danlos Society

Join EDS ECHO Nursing Program

The EDS ECHO Nurses program is for practicing community and hospital-based nurses with an interest in learning more about the management of EDS and HSD.

EDS ECHO is a collection of virtual learning programs for healthcare professionals across all disciplines who want to improve their ability to care for people with Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and associated symptoms and conditions.

Project ECHO® addresses population health in a scalable way — moving knowledge instead of patients via telementoring and collaborative care. The heart of the ECHO model™ is its hub-and-spoke knowledge-sharing networks, led by expert specialist teams. The ECHO model is not “telemedicine” where specialists assume the care of the patient; it is a guided model aimed at practice improvement, in which providers retain responsibility for patients, and gain increasing independence as skills, confidence, and self-efficacy grow.

The Ehlers-Danlos Society is launching an ECHO program for nurses practicing in community and hospital-based settings. 

The program will run on Thursdays at 12 noon Eastern Time (USA). 

Each session will be 90 minutes duration, and include a combination of expert speaker discussion, cases from participants, and open discussion of practical issues. Our EDS ECHO programs receive CME/CPD accreditation through the University of New Mexico, USA, the academic base of Project ECHO®.  

Areas for discussion will include: 

  • Features of EDS/HSD 
  • Pain management
  • Surgical care (pre- and post-op)
  • Skin/wound care
  • Vascular issues—IVs/lines/ports
  • Medication management
  • Braces, Splints, Orthotics
  • Dysautonomia (POTS)
  • Case management
  • Advocating for patients
  • Patient education

This is a virtual program, you will be sent a link to join the sessions which are run via the zoom platform.

Once signed up, we ask that you attend a minimum of 3 out of the 6 sessions. You can catch up with the sessions you miss by watching our password protected recordings online, you will receive the password to watch these after you have attended your first live session. Each program will accept new participant submissions up to week 3 of the program, after which time you may be added to the list for the following program.

Each EDS ECHO session is worth 1.5 CME credits.

Please complete the application form here to apply for a place on the EDS ECHO Nurses Program. We will email you to confirm if your application has been successful.

For all queries regarding EDS ECHO, please email our Clinic Coordinator.

The program dates for the first six months are Thursdays at 12 noon Eastern Time (USA): 

August 6, 2020

September 3, 2020

October 8, 2020

November 19, 2020

December 10, 2020

January 14, 2021

Click below to view the recordings for the relevant program. Please note, you will need the password to access these resources.