EDS ECHO SUMMIT: A Virtual Scientific Conference on EDS, HSD, and Comorbidities

EDS ECHO Summit 2020

AMA Designation Statement
Project ECHO® designates this live activity for a maximum of 14.5 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

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We are proudly working to provide global learning conferences on the multisystemic nature of the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and comorbid conditions.

Our aim is to reduce the time to diagnosis, ensure validation and recognition for the lived experiences of those affected by EDS and HSD, and for all to be able to access effective treatment and care, worldwide.

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EDS ECHO SUMMIT: A Virtual Scientific Conference on EDS, HSD, and Comorbidities

October 2-3, 2020

The Ehlers-Danlos Society was delighted to host its first EDS ECHO Summit; a virtual scientific conference for health and social care practitioners. This scientific meeting will explore the most up-to-date knowledge of, and research into, the association, causation, and management of comorbidities seen in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). 


The event took place virtually via Zoom Webinar. The format of the EDS ECHO summit is plenary sessions, each dedicated to an area of comorbidity and including combinations of expert updates on the current literature and future needs; and oral and poster presentations of chosen submitted scientific abstracts and clinical case reports.

Topics include:

  • Physical therapies
  • Pain mechanisms
  • Dental complications
  • Psychiatric conditions
  • Urological complications
  • Immune dysregulation, intolerance, and allergy disorders
  • ENT disorders
  • Neurodiversity (ADHD and Autism), EDS, and HSD
  • Gastrointestinal disorders
  • Respiratory concerns
  • Autonomic dysfunction
  • Orthopedic surgical outcomes
  • Gynaecological (Pelvic Floor, Pregnancy) concerns
  • Neurological (craniocervical) complications

The objectives of the event are to:

1.    Gain an understanding of the evidence-base for associations between EDS, HSD, and co-morbid conditions, by review of the most up to date clinical and basic science literature.
2.    Appreciate the assessment and treatment options and challenges in the management of co-morbidities, and where applicable the evidence of causation of co-morbidities in EDS and HSD and how this impacts choice/adaptations of treatment.
3.    Gain insight into the clinical and basic science questions that influence future research objectives in the field of EDS and HSD. 

This event is for health care and clinical research professionals and invited representatives of allied organizations.

If you have further questions please email events@ehlers-danlos.com

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