EDS ECHO Summit – Abstract Posters

EDS ECHO Summit 2020

EDS ECHO Summit – Abstract Posters

Author Index

Subject Index

Poster 001 – A Maitland et al.
Immune Dysfunction, both mast cell activation disorders and primary immune deficiency, is common among patient with hypermobile spectrum disorder (HSD) or hypermobile type Ehlers-Danlos Syndrome (hEDS)
Subject Area(s): Allergy / Immunology

Poster 002 – D Anderson
Oxalates and hEDS: Dysbiosis, Histamines, Crystals, and Acidity Create A Perfect Storm
Subject Area(s): Gastroenterology / Abdominal Pain

Poster 003 – R Brooks et al.
Prevalence of Gastrointestinal, Cardiovascular, Autonomic, and Allergic Conditions in Hospitalized Patients with Ehlers-Danlos Syndrome: A Case Control Study
Subject Area(s): Allergy / Immunology, Autonomic, Gastroenterology / Abdominal Pain, Multi-systemic Disorder

Poster 004 – W Sandmann et al.
EDS Complications by Severe Scoliosis and Three Retroperitoneal and Pelvic Compression Syndromes (RPCS)
Subject Area(s): Bladder & Pelvis, Gastroenterology / Abdominal Pain

Poster 005 – W Sandmann et al.
Hyper-Elastic Fibrous Tissue Disorder is a Risk Factor for Development of Multiple Retro-Peritoneal and Pelvic Compression Syndromes and for Recurrences After Surgery
Subject Area(s): Gastroenterology / Abdominal Pain

Poster 006 – A Guggenheim
Spontaneous Intracranial Hypotension: An Underrecognized cause of debilitating symptoms in hypermobile connective tissue disorders
Subject Area(s): Intracranial Hypotension

Poster 007 – S Hennessey
Using Qualitative Movement Analysis to Direct Rehabilitation of a Patient With Lumbo-Pelvic Pain and Ge – neralized-Hypermobility Spectrum Disorder: A Case Study
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools 

Poster 008 – Wang & Stecco
Fascial Thickness and Stiffness in Hypermobile Ehlers-Danlos Syndrome
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools 

Poster 009 – Liaghat et al.
Heavy Shoulder Strengthening Exercises in Patents with Hypermobility Spectrum Disorder and Persistent Shoulder Problems: A Feasibility Study
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 010 – V Athanasoglou et al.
What is the Influence of Lower Limb Joint Hypermobility on Neuromuscular Performant in Young Greek Gymnasts?
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 011 – N Alsiri et al.
The Impact of Joint Hypermobility Syndrome on Knee Proprioception in a Weight-Bearing Position in Adults
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 012A – I De Wandele et al.
Development and Initial Validation of The Spider, a Multisystem Symptom Impact Questionnaire for Patients with Joint Hypermobility (Part One)
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools 

Poster 012B – E Tang et al.
Development and Initial Validation of The Spider, a Multisystem Symptom Impact Questionnaire for Patients with Joint Hypermobility (Part Two)
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative

Poster 014 – W Sandmann et al.
The Surprising Frequency of Hypermobile Ehlers-Danlos (hEDS) Among Patients with Abdominal and Pelvic Compression Syndromes (APCS)
Subject Area(s): Bladder & Pelvis, Gastroenterology / Abdominal Pain

Poster 015 – J Glayzer et al. –Unfortunately, due to containing unpublished data, this presentation cannot be shared at this time.
Dyspareunia and Vulvodynia in Women with Ehlers-Danlos Syndrome: An Online Survey
Subject Area(s): Bladder & Pelvis, Gastroenterology / Abdominal Pain

Poster 016 – S.E. Bennett et al. 
The Psycholsocial Impact of Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS): A Qualitative Study
Subject Area(s): Psychology

Poster 017 – S.E. Bennett et al.
Developing a Self-Management Intervention to Manage Hypermobility Sprectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS): An Analysis Informed by Behaviour Change Theory
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 018 – M Veriki et al
Parental Perceptions on Lower Urinary Tract Dysfunction of Children with Joint Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS)
Subject Area(s): Bladder & Pelvis

Poster 019 – C.M. Lam et al.
Characterisation of Laryngological Presentation and Patient Reported Outcome Measures in Patients with Ehlers-Danlos Syndrome
Subject Area(s): Ear, Nose & Throat

Poster 020 – S Palmer et al.
The Effectiveness of Conservative Interventions for the Management of Syndromic Hypermobility: A Systematic Literature Review
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 021 – R Dhingra et al. 
Gastrointestinal Medication Burden Among Persons with the Ehlers-Danlos Syndromes
Subject Area(s): Gastroenterology / Abdominal Pain

Poster 022 – Hakim et al.
Self-Reported Changes in Health Status During the Coronavirus Pandemic: A Survey of Individuals with Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder
Subject Area(s): Allergy / Immunology, Autonomic, Bladder and Pelvis, Gastroenterology / Abdominal Pain, Multi-systemic Disorder & Psychology

Poster 023 – K Stahl
The ‘KStahl’ Sign: An Aid for the Diagnosis of HSD
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools 

Author Index

Subject Index

Poster 001 – A Maitland et al.
Immune Dysfunction, both mast cell activation disorders and primary immune deficiency, is common among patient with hypermobile spectrum disorder (HSD) or hypermobile type Ehlers-Danlos Syndrome (hEDS)
Subject Area(s): Allergy / Immunology

Poster 002 – D Anderson
Oxalates and hEDS: Dysbiosis, Histamines, Crystals, and Acidity Create A Perfect Storm
Subject Area(s): Gastroenterology / Abdominal Pain

Poster 003 – R Brooks et al.
Prevalence of Gastrointestinal, Cardiovascular, Autonomic, and Allergic Conditions in Hospitalized Patients with Ehlers-Danlos Syndrome: A Case Control Study
Subject Area(s): Allergy / Immunology, Autonomic, Gastroenterology / Abdominal Pain, Multi-systemic Disorder

Poster 004 – W Sandmann et al.
EDS Complications by Severe Scoliosis and Three Retroperitoneal and Pelvic Compression Syndromes (RPCS)
Subject Area(s): Bladder & Pelvis, Gastroenterology / Abdominal Pain

Poster 005 – W Sandmann et al.
Hyper-Elastic Fibrous Tissue Disorder is a Risk Factor for Development of Multiple Retro-Peritoneal and Pelvic Compression Syndromes and for Recurrences After Surgery
Subject Area(s): Gastroenterology / Abdominal Pain

Poster 006 – A Guggenheim
Spontaneous Intracranial Hypotension: An Underrecognized cause of debilitating symptoms in hypermobile connective tissue disorders
Subject Area(s): Intracranial Hypotension

Poster 007 – S Hennessey
Using Qualitative Movement Analysis to Direct Rehabilitation of a Patient With Lumbo-Pelvic Pain and Ge – neralized-Hypermobility Spectrum Disorder: A Case Study
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools 

Poster 008 – Wang & Stecco
Fascial Thickness and Stiffness in Hypermobile Ehlers-Danlos Syndrome
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools 

Poster 009 – Liaghat et al.
Heavy Shoulder Strengthening Exercises in Patents with Hypermobility Spectrum Disorder and Persistent Shoulder Problems: A Feasibility Study
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 010 – V Athanasoglou et al.
What is the Influence of Lower Limb Joint Hypermobility on Neuromuscular Performant in Young Greek Gymnasts?
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 011 – N Alsiri et al.
The Impact of Joint Hypermobility Syndrome on Knee Proprioception in a Weight-Bearing Position in Adults
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 012A – I De Wandele et al.
Development and Initial Validation of The Spider, a Multisystem Symptom Impact Questionnaire for Patients with Joint Hypermobility (Part One)
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools 

Poster 012B – E Tang et al.
Development and Initial Validation of The Spider, a Multisystem Symptom Impact Questionnaire for Patients with Joint Hypermobility (Part Two)
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative

Poster 014 – W Sandmann et al.
The Surprising Frequency of Hypermobile Ehlers-Danlos (hEDS) Among Patients with Abdominal and Pelvic Compression Syndromes (APCS)
Subject Area(s): Bladder & Pelvis, Gastroenterology / Abdominal Pain

Poster 015 – J Glayzer et al.
Dyspareunia and Vulvodynia in Women with Ehlers-Danlos Syndrome: An Online Survey
Subject Area(s): Bladder & Pelvis, Gastroenterology / Abdominal Pain

Poster 016 – S.E. Bennett et al. 
The Psycholsocial Impact of Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS): A Qualitative Study
Subject Area(s): Psychology

Poster 017 – S.E. Bennett et al.
Developing a Self-Management Intervention to Manage Hypermobility Sprectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS): An Analysis Informed by Behaviour Change Theory
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 018 – M Veriki et al
Parental Perceptions on Lower Urinary Tract Dysfunction of Children with Joint Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS)
Subject Area(s): Bladder & Pelvis

Poster 019 – C.M. Lam et al.
Characterisation of Laryngological Presentation and Patient Reported Outcome Measures in Patients with Ehlers-Danlos Syndrome
Subject Area(s): Ear, Nose & Throat

Poster 020 – S Palmer et al.
The Effectiveness of Conservative Interventions for the Management of Syndromic Hypermobility: A Systematic Literature Review
Subject Area(s): Physical Medicine and Rehabilitation – Treatment

Poster 021 – R Dhingra et al. 
Gastrointestinal Medication Burden Among Persons with the Ehlers-Danlos Syndromes
Subject Area(s): Gastroenterology / Abdominal Pain

Poster 022 – Hakim et al.
Self-Reported Changes in Health Status During the Coronavirus Pandemic: A Survey of Individuals with Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder
Subject Area(s): Allergy / Immunology, Autonomic, Bladder and Pelvis, Gastroenterology / Abdominal Pain, Multi-systemic Disorder & Psychology

Poster 023 – K Stahl
The ‘KStahl’ Sign: An Aid for the Diagnosis of HSD
Subject Area(s): Physical Medicine and Rehabilitation – Qualitative and Quantitative tools