Published: 17/04/2025 Tags: The Ehlers-Danlos Society News

EDS ECHO Walk and Roll: All Move, All Together

EDS ECHO Walk and Roll: All Move, All Together
2,000 km | $10,000 | One Mission

This May, the EDS ECHO team—including facilitators, presenters, and administrative staff—are hitting the road (and treadmill!) for May Awareness Month with one goal: to move together in support of the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) community. Under the banner “All Move, All Together”, we’re proud to launch the EDS ECHO Walk and Roll Challenge—a collective effort to cover 2,000 km and raise $10,000 for The Ehlers-Danlos Society.

About EDS ECHO
EDS ECHO is a global series of virtual programs and courses for healthcare professionals and patient advocates seeking to improve their understanding of EDS and HSD. As part of the global Project ECHO initiative, we follow the guiding philosophy: “All Teach, All Learn.”Through shared knowledge and peer-to-peer mentorship, we’re working to increase the availability of accurate diagnosis, effective care, and ongoing support for individuals living with these complex conditions.

Why We Walk and Roll
Too many people face a lifetime of misdiagnosis, stigma, or lack of access to proper care. We’re walking and rolling to:

  • Raise awareness about the challenges faced by those with EDS and HSD
  • Support groundbreaking education programs for health professionals
  • Help fund the Society’s mission to accelerate research and improve global access to care

Every step we take brings us closer to a world where no one faces EDS or HSD alone—and where quality of care isn’t determined by geography or wealth.

Support the Movement
Donate now.

Join the Walk and Roll Challenge and create your own fundraiser.

Join The Ehlers-Danlos Society’s message board

Inspire

The Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration.

This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner.

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