Psychological & Emotional Health — Living with EDS/HSD Edinburgh, Scotland, November 2, 2019

Register today and watch live-streamed sessions wherever you are in the world!


If you are not attending our one-day conference in Edinburgh on November 2, you can tune in live to watch presentations exploring the mind-body connection in the Ehlers-Danlos syndromes and hypermobility spectrum disorders.

Renowned speakers from the UK will share their clinical experience and consider the literature on psychosocial wellbeing, highlighting the importance of a holistic approach in supporting individuals with EDS and HSD.

Patients and carers of people with EDS and HSD will also share their experiences of living with these conditions, and the benefits and hurdles of using these tools.

We’re excited to be able to bring together our communities globally via live-stream. The Main sessions will be broadcast at the following times, Greenwich Mean Time (GMT):

08.45–09.00am Why is this important? Lara Bloom

09.00–09.20am EDS, HSD, and Psychological Health – what do the studies tell us? Dr. Alan Hakim

09.20–09.50am Trauma and Post-Traumatic Stress Disorder – What is it and could it affect me? Dr. Chad Shepherd

09.50–10.00am Q&A

10.30–11.00am ADHD, EDS and HSD – James Kustow

11.00–11.15am Q&A

11.15–11.45am No brain no gain – Dr. Helen Cohen

11.45–12.00noon Q&A

1.00–1:30pm  Dealing with a Family Diagnosis – Jess Bowen

1.30 – 2.00pm Supporting Children and Teenagers – Tania Tirraro

2.00 – 2.30pm The Patient Voice – Coping with a new ‘Norm’ – Natasha Silverman

2.30 – 2.45pm Q&A

3.15 – 3.45pm Medication for anxiety and depression – Dr. Alan Hakim

3.45 – 4.15pm Mindfulness- the importance for hypermobile individuals – Philip Bull

Embodying mindfulness through the Alexander Technique – Julia Woodman

4.15 – 4.45pm  Talking Therapies – Psychological approaches to supporting people with complex and chronic conditions – Dr. Chad Shepherd

4.45 – 5.00pm Q&A

5.00 – 5.15pm Wrap Up and Farewell – Lara Bloom

Register now to get the live-stream link and join us virtually in Edinburgh! Download the conference app here. Those viewing will be able to participate in question and answer segments of the stream through the app. Use timezoneconvertor to find the streaming times in your local timezone.

We look forward to having you with us! Together we dazzle.

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