Keys Community Construction Golf Tournament Fundraiser

Derek and Beth Lazzara are hosting a golf tournament in support of The Ehlers-Danlos Society! Taking place on February 12th, 2022, the tournament will be a four-person scramble format. Entry is $100 per. person and the tournament will be held at the Sombrero Country Club, 4000 Sombrero Blvd, Marathon, Florida 33050.

Sign up early, this will sell out! Join Derek and Beth for awards, prizes, raffles, an auction, and food and beverages.

For entries and details call Derrick Lazzara on 786-933-0069.

The start time is 8 am with a light breakfast and registration. 9 am shotgun start

On the course fun will be hosted by “The Old Chickens” and there will be an after golf- lunch and awards presentation.

Presented by Keys Community Construction, ‘Your key to the Keys Communities” 305-783-6789 [email protected]

Donations are payable to Florida Keys Ehlers-Danlos Society. Donations of gift certificates and items to be raffled are appreciated and marketing items are welcome.

Call Derrick Lazzara 786-933-0069 or Beth Lazzara 305-680-9393 for any further information.

Jennifer Bond Baker – 10% of Music Sales Benefitting The Ehlers-Danlos Society

When: Ongoing


10% of proceeds from the sale of Take My Hand will benefit The Ehlers-Danlos Society. Take My Hand is a solo piano album composed and recorded during the lockdown of 2020 by EDS Zebra, Jennifer Bond Baker. Jennifer has dedicated the album to those suffering with chronic illness and to those who keep them going! Through her music, website, and social media accounts, she wishes to raise awareness of Ehlers-Danlos Syndrome as well as serve the community to which she belongs. Visit Jennifer’s website here.

Zebra Art: Epic Printing Shop


Zebra Art: Epic Printing Shop

When: On-Going


Gustavo Oduber Jr (a.k.a Oduber-Quigley artistic name) has painting as early as the age of ten, he developed a distinctive style with pen & ink. His major subject matter is the world famous Divi-Divi trees and its surroundings, including the country homes in Aruba, Dutch Antilles, where he was born. He has created his online store called Epic Printing Shop. He provides his Zebra’s Images on print-on-demand products like fashion wear and accessories as well as selling Limited Edition Giclee of his artwork. He has fashioned a unique signature. There are many artist painting zebras in many shapes and colors. Yet in order for him to stand apart, he developed a unique approach which was simplistic and two folds: 1-abstract with primitive symbols and some sort of zebra related images and 2- Ode to the great masters with a zebra image. 10% of the proceeds will be donated to the Ehlers-Danlos Society.

Pain and Nibble Feed Your Creativity


Custom Jewelry Fundraiser

When: On-Going

Purchase custom empowering jewelry such as bracelets, charms key chains, book markers, and necklaces featuring zebra themed beads. Sterling silver Zebra hearts and Zebra compression socks are also available. Up to 40% of the proceeds will be donated to The Ehlers-Danlos Society. Virtual appointments can be made for those wishing to design their own keepsake. For more information, please visit the Crafting4acause website.

RARE. Ehlers-Danlos syndromes


Find Your Rare Fundraiser

When: On-Going

Behind every RARE. product is a mission to spread awareness around rare diseases and advocate for those struggling silently with them everyday. We want to make the invisible – visible. And that’s why we created RARE.
Kristine and Theresa connected over Instagram in August 2019 they instantly bonded over their shared passion, drive, and mission to raise awareness for rare diseases and invisible causes. They realized that together they could accomplish more than acting as separate establishments and decided to collaborate. After a few months of casual communication back and forth online, they started to create items for their collaborative line. Quickly both realized the impact they could make by partnering before ever officially meeting. In January 2020, they took the rare risk of becoming business partners to accomplish their mission. Together they are creating a community of change and cultivating kindness.

Up to 40% of the proceeds will be donated to The Ehlers-Danlos Society.  For more information, please visit the RARE. website.

Note: These events are not run by the Ehlers-Danlos Society.

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The Ehlers-Danlos Society uses The Network for Good platform to receive online donations and their details will appear on your credit card statement following a donation to our organization. Network for Good’s Donor Advised Fund is an accredited charity by the Better Business Bureau.   

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