EDS Fundraising Events Around the World

DFW EDS Awareness 5K/1 mile

DFW EDS Awareness 5K/1mile

When: May 11, 2019 • 7am

Where: River Legacy Park
701 NW Green Oaks Blvd., Arlington, TX 76006

Join the Dallas-Fort Worth Zebras for a 5K/1-mile race/walk for Zebras, by Zebras, to support The Ehlers-Danlos Society. “Walk with a Zebra Team Program” provides a team of two people, a zebra walker and a buddy. Walking buddies stay together for the entirety of the race ensuring that a zebra walker isn’t alone during the event. Invite your friends to join your team and walk with you. For more information, registration, and to create your own fundraising page, visit http://dfwedsawareness.com.

Pie Five Pizza logo

Pie Five Pizza Fundraiser

When: May 2, 2019 • 5pm-9pm

Where: Pie Five Pizza, Boulevard College Center
10995 Owings Mills Blvd, Owings Mills, MD 21117

Pie Five Pizza’s Boulevard College Center location will donate 20% of the sales on Thursday, May 2 2019 from 5pm-9pm to The Ehlers-Danlos Society. Customers must mention The Elhers-Danlos Society or EDS at time of checkout. For more information, please visit https://www.piefivepizza.com.

Pain and Nibble Feed Your Creativity

 

Custom Jewelry Fundraiser

When: On-Going

Purchase custom empowering jewelry such as bracelets, key chains, book markers, and necklaces featuring zebra themed beads. Proceeds will be donated to The Ehlers-Danlos Society. For more information, please visit https://deborahvick.wixsite.com/crafting4acause.

MUSE Inspire Conference – Selected Charity

When: May 28-31, 2019

Where: Studios 207
Gaylord Opryland Resort, Nashville, TN

The Ehlers-Danlos Society is proud to have been chosen as the selected charity for the 2019 MUSE (Medical Users Software Exchange) Inspire Conference. Conference attendees purchase pins with full purchase price donated to The Ehlers-Danlos Society, and also matched by the conference sponsor, Summit Healthcare. For more information or to purchase tickets, please visit: https://www.museweb.org/2019inspireconference/home

Pain and Nibble Feed Your Creativity

Paint & Nibbles Fundraiser

When: May 2, 2019 at 6:00 pm
              May 4, 2019 at 11:00 am

Where: Studios 207
207 East Depot Street, Bedford, VA

Paint & Nibble hosts its first fundraiser for The Ehlers-Danlos Society. This is a paint party event in which participants will follow along with the instructor as they paint their own version of the painting for the day. No experience is necessary, and all supplies are included: paint, brushes, canvas, apron, and appetizers! Bottled water will be available. Parking lot right next to the event, and there are no stairs. Tickets are $35 per person with 30% of proceeds donated to The Ehlers-Danlos Society. Register online at www.paintandnibble.com or www.zenendipity.com/events–classes.html.

Street Concert Fundraiser

When: March 29, 2019

Where: Bowling Green State University
2366 Coe Court, Perrysburg, OH 43551

Join the Phi Mu Alpha Fraternity – Iota Omicron Chapter at Bowling Green State University on March 29 at 7pm for a street concert to benefit The Ehlers-Danlos Society. Visit our facebook page for more information: https://www.facebook.com/BGSUPMA.

Book Sales Fundraiser: The Elfling Princess

When: All of 2019

Where: http://getbook.at/ElflingPrincess

Author Cheryl Kaye Tardif will donate 100% of royalties for sales of her children’s ebook, The Elfling Princess, as well as from the printed soft cover edition, for all of 2019.  Buy the ebook or soft cover here: http://getbook.at/ElflingPrincess

Fundraiser

When: March 2, 2019

Where: Hoopeston First Church of God
1004 E Orange St, Hoopeston IL, 60942

Join us for an informational fundraising event featuring a silent auction, live singer and speakers, a bake sale, photo booth, and kids play area. For more information contact Connorgilonske7@gmail.com.

“A.W.A.R.E Necklace” Fundraiser

When: December 2018 – December 2019

Where: https://awarecauses.com/products/zebra-stripe-awareness-necklace

AWARECauses is a jewelry line that raises awareness and provides a way to actively support EDS. AWARE stands for “A Way to Act and Remember Everyday”. AWARECauses will donate 10% of the proceeds of their Zebra Stripe Necklace to the Ehlers-Danlos Society.

 

“Song of Myself ” Fundraiser

“Song of Myself”, a professional jazz album, features an all-star quintet playing original compositions and standards with sales benefiting research, treatment and outreach for Ehlers-Danlos Syndrome (EDS), a connective tissue disorder. The project began as my 10th-grade International Baccalaureate Personal Project, but soon assumed greater significance. The daily example of one of my high-school classmates, a talented saxophonist and Ehlers-Dalos patient who inspired me with their courage, grace, and humor despite sometimes-debilitating symptoms, motivated me to donate the album’s sales to help EDS patients.

This fundraiser runs until September 1st, 2019

Click here for more information.


Note: These events are not run by the Ehlers-Danlos Society.

If you have an event you want listed on these pages, please use this form.

Past Fundraising Events

Pampered Chef Ehlers-Danlos Society Fundraiser

When: October 29 – November 3, 2018

Where: https://pamperedchef.com/party/EhlersDanlosSoc1118

Together, we can make a difference. Order Pampered Chef products through the Fundraiser Catalog Show and up to 15% of total sales will go to The Ehlers-Danlos Society. In addition, the host will be donating 100% of her commission from this show to The Ehlers-Danlos Society. That means up to 30% of total sales from the online event will be donated to The Ehlers-Danlos Society. Plus, an extra $3 is contributed from every Show booked from the event.

Volley for Support

When:Friday, October 12, 2018 @ 5:30pm
Where:Cherry Hill High School East
1750 Kresson Rd
Cherry Hill, NJ
 

Volley for Support is an annual fundraiser held in Cherry Hill Public Schools where teachers and staff from all of the district’s 19 buildings square off in a volleyball tournament. All of the schools hold fundraisers and sell t-shirts leading up to the event. The event itself includes gift basket raffles, food, activities and more, with all proceeds going to a local nonprofit.  The Ehlers-Danlos Society is honored to have been chosen as the 2018 recipient of the 14th Annual Volley for Support. For more information or to donate, please visit https://www.facebook.com/VolleyforSupport

Pampered Chef Ehlers-Danlos Society Fundraiser

When: September 5 – September 26, 2018

Where: https://pamperedchef.com/party/EhlersDanlosSoc918

Together, we can make a difference. Order Pampered Chef products through the Fundraiser Catalog Show and up to 15% of total sales will go to The Ehlers-Danlos Society. In addition, the host will be donating 100% of her commission from this show to The Ehlers-Danlos Society. That means up to 30% of total sales from the online event will be donated to The Ehlers-Danlos Society. Plus, an extra $3 is contributed from every Show booked from the event.

2nd Annual EDS Awareness Party

May 20, 4-7pm

location:
Burbank Bar & Grille
112 N San Fernando Blvd
Burbank CA, 91502
United States

San Fernando Valley Zebras, SoCal Zebras, SoCal EDS etc., and 805 Zebras are joining forces to throw the 2nd Annual EDS Awareness Party! Zebras, families, friends, and medical professionals are all invited. Get together with other EDS Zebras from across Southern California to party, learn about EDS, raise awareness, and fundraise for the Ehlers Danlos Society. Tickets are $10.

For more information, visit one of the group pages or email Elana Simon.

Music for Ehlers-Danlos Syndrome Hope Benefit Concert

Sunday, April 30, 2017

Location:
Northern Hills Synagogue
5714 Fields Ertel Road
Cincinnati, Ohio 45249
United States

Contact: Vanessa Leahr, vanessa.leahr@gmail.com

Click here for more info

Hoofbeats 5K Race

6/3/2017

Concord, NH

Print and post!

Click here for flyer

Click here for poster


Note: These events are not run by the Ehlers-Danlos Society.

If you have an event you want listed on these pages, please use this form.