EDS Fundraising Events Around the World

Volley for Support

When:Friday, October 12, 2018 @ 5:30pm
Where:Cherry Hill High School East
1750 Kresson Rd
Cherry Hill, NJ

Volley for Support is an annual fundraiser held in Cherry Hill Public Schools where teachers and staff from all of the district’s 19 buildings square off in a volleyball tournament. All of the schools hold fundraisers and sell t-shirts leading up to the event. The event itself includes gift basket raffles, food, activities and more, with all proceeds going to a local nonprofit.  The Ehlers-Danlos Society is honored to have been chosen as the 2018 recipient of the 14th Annual Volley for Support. For more information or to donate, please visit https://www.facebook.com/VolleyforSupport

“A.W.A.R.E Necklace” Fundraiser

When: December 2018 – December 2019

Where: https://awarecauses.com/products/zebra-stripe-awareness-necklace

AWARECauses is a jewelry line that raises awareness and provides a way to actively support EDS. AWARE stands for “A Way to Act and Remember Everyday”. AWARECauses will donate 10% of the proceeds of their Zebra Stripe Necklace to the Ehlers-Danlos Society.


“Song of Myself ” Fundraiser

“Song of Myself”, a professional jazz album, features an all-star quintet playing original compositions and standards with sales benefiting research, treatment and outreach for Ehlers-Danlos Syndrome (EDS), a connective tissue disorder. The project began as my 10th-grade International Baccalaureate Personal Project, but soon assumed greater significance. The daily example of one of my high-school classmates, a talented saxophonist and Ehlers-Dalos patient who inspired me with their courage, grace, and humor despite sometimes-debilitating symptoms, motivated me to donate the album’s sales to help EDS patients.

This fundraiser runs until September 1st, 2019

Click here for more information.

Pampered Chef Ehlers-Danlos Society Fundraiser

When: September 5 – September 26, 2018

Where: https://pamperedchef.com/party/EhlersDanlosSoc918

Together, we can make a difference. Order Pampered Chef products through the Fundraiser Catalog Show and up to 15% of total sales will go to The Ehlers-Danlos Society. In addition, the host will be donating 100% of her commission from this show to The Ehlers-Danlos Society. That means up to 30% of total sales from the online event will be donated to The Ehlers-Danlos Society. Plus, an extra $3 is contributed from every Show booked from the event.

2nd Annual EDS Awareness Party

May 20, 4-7pm

Burbank Bar & Grille
112 N San Fernando Blvd
Burbank CA, 91502
United States

San Fernando Valley Zebras, SoCal Zebras, SoCal EDS etc., and 805 Zebras are joining forces to throw the 2nd Annual EDS Awareness Party! Zebras, families, friends, and medical professionals are all invited. Get together with other EDS Zebras from across Southern California to party, learn about EDS, raise awareness, and fundraise for the Ehlers Danlos Society. Tickets are $10.

For more information, visit one of the group pages or email Elana Simon.

Music for Ehlers-Danlos Syndrome Hope Benefit Concert

Sunday, April 30, 2017

Northern Hills Synagogue
5714 Fields Ertel Road
Cincinnati, Ohio 45249
United States

Contact: Vanessa Leahr, vanessa.leahr@gmail.com

Click here for more info

Hoofbeats 5K Race


Concord, NH

Print and post!

Click here for flyer

Click here for poster

Note: These events are not run by the Ehlers-Danlos Society.

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