Calling the Helpline

For general questions regarding the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)​:

  1. Please call the toll-free number listed for your country. Leave a message, including the country you’re calling from, and our Helpline staff will call you back (in most cases within three business days).
  2. If no number is yet available for your country, please use this form to have someone call you back.
  3. When using cell phones, regular minute rates will apply. Our phone lines operate like calling a toll-free number vs an international number from a cell phone; there are no extra charges for the international call, but you will pay for the minutes of air time used.
  4. Help is currently available only in English.

The Ehlers-Danlos Society’s mission is to spread awareness and knowledge of types of EDS and HSD, educate medical professionals, and foster and fund research. Contacting the Helpline implies an understanding that it is not a substitute for medical advice and/or care by a medical professional.

If you prefer, you can also email the helpline — and if you have questions or comments not related to the helpline, please contact us here.

Trouble reaching one of the phone numbers? Please help us improve by reporting the issue here. Thank you.

Australia (AU)
0011 800 HELP4EDS
0011 800 43574337
Austria (AT)
00 800 HELP4EDS
00 800 43574337
Belgium (BE)
00 800 HELP4EDS
00 800 43574337
Canada (CA)
1 866 6062958
Colombia (CO)
00 800 HELP4EDS
00 800 43574337
Denmark (DK)
00 800 HELP4EDS
00 800 43574337
Finland (FI)
990 800 HELP4EDS
990 800 43574337
France (FR)
00 800 HELP4EDS
00 800 43574337
Germany (DE)
00 800 HELP4EDS
00 800 43574337
Greece (GR)
00 800 HELP4EDS
00 800 43574337
Hungary (HU)
00 800 HELP4EDS
00 800 43574337
Iceland (IS)
00 800 HELP4EDS
00 800 43574337
India (IN)
+91 800 0501393
Ireland (IE)
00 800 HELP4EDS
00 800 43574337
Israel (IL)
00 800 HELP4EDS
00 800 43574337
Italy (IT)
00 800 HELP4EDS
00 800 43574337
Japan (JP)
010 800 HELP4EDS

010 800 43574337

If Softbank Network:
0061 010 800 43574337

Luxembourg (LU)
00 800 HELP4EDS
00 800 43574337
Netherlands, The (NL)
00 800 HELP4EDS
00 800 43574337
New Zealand (NZ)
00 800 HELP4EDS
00 800 43574337
Norway (NO)
00 800 HELP4EDS
00 800 43574337
Poland (PL)
00 800 HELP4EDS
00 800 43574337
Portugal (PT)
00 800 HELP4EDS
00 800 43574337
Spain (ES)
00 800  HELP4EDS
00 800  43574337
Sweden (SE)
00 800 HELP4EDS
00 800 43574337
Switzerland (CH)
00 800 HELP4EDS
00 800 43574337
United Kingdom (UK)
00 800 HELP4EDS
00 800 43574337
United States (US)
1 866 6161735