Calling the Helpline

For general questions regarding the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)​:

  1. Please call the Helpline at 248-716-8336. Leave a message, including the time zone that you’re calling from.  Our Helpline staff will call you back (usually within three business days).
  2. If you are unable to call our number, please use this form to have someone call you back.
  3. Help is currently available only in English.

The Ehlers-Danlos Society’s mission is to spread awareness and knowledge of types of EDS and HSD, educate medical professionals, and foster and fund research. Contacting the Helpline implies an understanding that it is not a substitute for medical advice and/or care by a medical professional.

If you prefer, you can also email the helpline — and if you have questions or comments not related to the helpline, please contact us here.