This program has ended.
The Ehlers-Danlos syndromes (EDS) are a group of 13 connective tissue gene disorders that produce a spectrum of complex problems across multiple systems of the body. In EDS, the connective tissue with which a person is built is not structured or processed correctly, which can cause a variety of issues in a wide range of severities and show up in unexpected places. While each type has some distinguishing diagnostic criteria, the effects of an EDS type can be unique to the individual.
Research is needed to address optimal management of the multiple complications of EDS and to examine the causes for EDS and how they fit with accompanying (co-morbid) disorders.
For families with EDS, there is hope that research will lead to improved medical care. The Ehlers-Danlos Society is providing a series of microgrants to fund exploration into new areas of understanding EDS and how they can be treated. Awards of up to $5,000 are available, in effect for one year from the project start date. Our funds are limited; please ask only for what you need to complete your project. Technical services, salaries, and project-specific supplies can be covered, but travel expenses and overhead cannot be paid from these microgrants.
- directly impact care for one or more patients with an EDS of any type;
- be scientifically valid and feasible;
- have ethics approval (where applicable an ethics approval certificate will be required).
Anyone can submit an application through March 20, 2018 as long as they have a collaborator to receive funds who is associated with a recognized institution such as a medical school or hospital. The online application process asks applicants to describe how the study will improve care; include a scientific summary including sections for background, hypothesis, methods, and brief budgetary justification; and a plain language summary intended for a non-scientific and non-medical audience.
The review process will be blinded to personal and institutional information of the applicants. Applications will be assessed by both scientific and patient reviewers, who will examine the proposal’s impact on care, its scientific validity, and its relevance to patient priorities. Applicants who receive funding will be required on completion of the project to submit an abstract describing their work, written in understandable, non-expert language. If there is alternate funding available for the project, please be clear why the Society’s program should fund it. Funded projects are expected to lead to distribution of results through publication or meeting presentation, as well as when possible provide preliminary data for larger studies. Publications and presentations rising from the funded program should acknowledge the support of The Ehlers-Danlos Society.
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