Ellen Lenox Smith

Ellen Smith


Ellen Lenox Smith has emerged as a leading voice for patients living with pain. Featured in local and national press accounts, Mrs. Smith brings a reasoned and compassionate perspective to the need for safe patient access to medicine.

Mrs. Smith suffers from two rare, presently incurable conditions, Ehlers-Danlos Syndrome and sarcoidosis, enduring twenty-four surgeries.

Mrs. Smith has enjoyed a career in the field of education. Presently, she is a Rhode Island ambassador for the US Pain Foundation as Co-Director for Cannabis Advocacy, on the board of both the US Pain Foundation and the Rhode Island Patient Advocacy Coalition (RIPAC), appointed by the governor both to the ATEL Program, (Adaptive Telephone Equipment Loan Program) and represents patients on the Oversight Panel in RI that oversees the medical marijuana program. She helps run a Rhode Island EDS Support group. She is a staff writer for the National Pain Report and 1000 WATTS Magazine. She is the author of two books: It Hurts Like Hell!: I Live With Pain—And Have A Good Life Anyway and My Life as a Service Dog!

Mrs. Smith is a resident of Scituate, Rhode Island with her husband, Stuart, and parents of four sons and four grandchildren. Ellen was a master swimmer and high school swim coach.