Emma Louise Williams

Emma Louise Williams sits on the AHEAD Coalition and is known for her work as a child protection expert within the specialisms of Fabricated or Induced Illness (FII) and rare disease. Emma has historically been called upon by the national media as well as local authorities and legal professionals in order to act as an expert or signpost in relation to cases involving Fabricated or Induced Illness and Non-Accidental Injury. Known for her success as an advocate and exceptional statement and letter writing skills, Emma has contributed to the independent review into children’s social care in the UK as part of the AHEAD Coalition as well as being called upon to present as an expert international speaker by the Ehlers-Danlos Society. Emma’s key interests in child protection include how poor historical familial medical care in relation to rare disease contribute to parental anxiety being perceived as FII, how lack of appropriate pediatric intervention for Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders detrimentally affects best outcomes for children in comparison to their peers and the complexities surrounding the guidance on what is and what isn’t FII. Emma is keen to educate child protection and education professionals as well as closing the gaps for children with Ehlers-Danlos Syndrome via the provision of appropriate support in able to facilitate children living as best possible in line with their peers. Emma herself has Ehlers-Danlos Syndrome and Adrenal Insufficiency.