Event Impact – COVID-19

Updated: March 30, 2021

EDS Event Impact - COVID-19

The well-being of our community and health professionals is our utmost priority. Given the current situation with COVID-19 [Coronavirus], we have had to postpone or cancel some of our events. Please see the current events that have been affected, including information around registration and new dates if applicable.

2020 has shown us just how much we can accomplish virtually, and we are delighted to announce more virtual events coming in 2021 than ever before. Learn more here! 

HEDGE Study Screenings

The Ehlers-Danlos Society has had to make the difficult decision to cancel all planned HEDGE screening events in 2020:

Houston (Texas) / May 23-24, 2020

Frankfurt (Germany) / June 5, 2020

Toronto (Canada) / June 27, 2020

Phoenix AZ (USA) / July 9–11, 2020

Paris (France) / November 7-8, 2020

We are however delighted to announce a new screening and enrollment process for HEDGE to enable participants to now have blood drawn at home or another venue. Learn more here. 

Child Protection in EDS and HSD Roundtable, April 27, 2020

This event will now be a virtual event on January 10, 2021. For full details and to register click here. 

European Learning Conference, Paris, France

The Ehlers-Danlos Society has made the decision to cancel its European Learning Conference and HEDGE study screening in Paris, France, which was due to take place on April 24-25, 2021. Registrations will automatically be refunded. For full FAQS and information click here.

Vascular EDS (vEDS) Family Summer Camp

Regretfully we have had to cancel our vascular EDS (vEDS) family summer camp, due to take place on July 30 – August 1, 2021, in Cincinnati, Ohio, in conjunction with Camp Joy.

A new dedicated vEDS virtual event will now take place from July 30-31, 2021, with July 30 specifically for health professionals, and July 31 for the vEDS community, families, and caregivers. 

Learn more and register here. 

Global Learning Conference, Scottsdale, Arizona, USA

The Ehlers-Danlos Society has taken the decision to cancel its Global Learning Conference and HEDGE study screening, due to take place on August 5-7, 2021, in Scottsdale, Arizona, USA.

All registrations will be automatically refunded. Full event FAQs, and contact information can be found here.

Rome Scientific Symposium

The Rome Scientific Symposium due to take place on September 22-26 2021 has had to be rescheduled to September 14-17, 2022.

Classical Ehlers-Danlos syndrome (cEDS) conference

We were due to hold a conference focusing on classical Ehlers-Danlos syndrome (cEDS), at Baylor Medical Center in Houston, September 19-20, 2020. This was postponed to November 13-14, 2021 initially but is now again rescheduled to 2022.