2024 Global Learning Conference

2024 Global Learning Conference

July 17-21, 2024

Early-Bird Tickets Now Available – Save $100!

The Ehlers-Danlos Society is delighted to welcome you to register for our 2024 Global Learning Conference in Philadelphia, Pennsylvania, USA! We will be hosting this exciting hybrid event, both in-person and virtually. Join individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to five days of learning, collaboration, and networking.

The conference theme is EDS and HSD: From Head to Toe and will feature presentations, case studies, and panel discussions led by experts on the management of symptoms and comorbidities from head to toe in EDS and HSD. The event is suitable for community members and their friends and families, as well as healthcare professionals.

The event is fully hybrid and can be joined in person in Philadelphia, Pennsylvania, USA, or virtually from anywhere in the world. The virtual option will be hosted via Zoom webinar.

If you have any questions please contact our events team.

Below are the key items from the agenda:

Everyday Management Strategies:
Strategies for both patients and providers in everyday management.

Symptom Prioritization:
Prioritizing symptoms of EDS and HSD for evaluation.

Clinical Tools in Primary Care:
Integrating clinical tools for EDS and HSD in primary care settings.

Coping with Chronic Pain and Fatigue:
Strategies for dealing with chronic pain and fatigue associated with EDS and HSD.

Physician/Patient Relationship:
Establishing positive relationships between healthcare professionals and EDS and HSD patients.

Neurodivergence and Mental Wellbeing:
Exploring mental health, emotional resilience, and the intersection with neurodivergence.

Orofacial Region:
Addressing issues related to vision, nose, oral health, and orofacial functions.

Mindful Movement:
Incorporating mindful movement practices such as Pilates, Meditation, and Yoga.

Head and Neck Complications:
Unravelling neurological complications and treatment methods for the head and neck.

Breathing and Respiratory Wellness:
Exploring the role of breathing in systemic EDS and HSD management.

Elbows, Wrists, Hands, and Shoulders:
Strategies for managing instability and enhancing function in these joints.

Gastrointestinal Considerations:
Navigating GI challenges and optimizing diet and nutrition.

Urogynecological Concerns:
Addressing challenges related to pelvic health and urogynecological symptoms.

Pelvis and Hips:
Exploring issues related to the pelvis and hips.

Musculoskeletal Management:
Physical therapy techniques, corrective exercises, and injury prevention.

Knees, Ankles, Feet, & Mobility:
Strengthening, support, and care for these specific joints.

Building Strength, Stability, & Supporting Immunity:
Rehabilitation, lymphatic wellness, and managing hypermobility in children.

Research and Therapies:
Evaluation of peripheral nerve compression, non-pharmacologic management, and brain-based therapies.

Fascia Perspective:
Understanding the role of fascia in EDS and HSD, exploring prolotherapy, and manual therapy.

Our free Junior Zebras program, held concurrently with the main program schedule, will allow kids aged 6-12 and teens aged 13-17 the chance to make friends as they learn more about their condition in a fun and age-appropriate environment.

Healthcare professionals including physicians, nurses, and allied health professionals, are welcome to join sessions during the four days, to learn more about the symptoms and comorbidities of EDS and HSD, and how to improve the management and care for their patients. See available CME/CEU/CE credits for this event.

Early-bird and full event tickets include sessions on Wednesday, July 17-Saturday, July 20, 2024, that will feature presentations and workshops for individuals with all types of Ehlers-Danlos syndromes and hypermobility spectrum disorders.

In addition to being welcome to the full conference, we will also be hosting a meeting specifically on rarer types of Ehlers-Danlos syndromes on Sunday, July 21, 2024. Day tickets are available to attend this in person or virtually.

Venue Details

The Philadelphia Marriott Downtown is situated in downtown Philadelphia and is located close to the Liberty Bell and Independence Hall.

1200 Filbert St
Philadelphia
PA 19107
United States

Registrants who wish to book a room at the conference hotel at the special discounted rates listed below, should click here to book. Accessible rooms are available, but all room types are limited and get booked up fast, so we recommend booking early.

Room rate per night:

  • Double Room – $180
  • Triple Room – $200
  • Quadruple Room – $220

For those unable to travel to join us in person, we will be offering a comprehensive virtual experience with access to our event app, Whova, and lifetime access to on-demand recordings after the event airs.

Scholarship Applications Now Open

Thanks to the generosity of our donors, we are able to offer a number of scholarship places for this event. To apply for a scholarship please click below.

Sponsorship Opportunities

Sponsorships are available for this conference, with virtual and in-person package options. Please see our sponsorship prospectus and commitment form, or contact our team directly on giving@ehlers-danlos.com to discuss sponsorship opportunities.

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1:1 Visit with an EDS & HSD

Expert

We are pleased to offer a small number of in-person visits with a healthcare professional at the Global Learning Conference in Philadelphia.

These will be 15-30 minute time slots (dependent on the expert) for you to meet with an EDS and HSD expert to discuss an issue you may be confronting.

Your visit will not substitute for regular ongoing medical care or provide a diagnosis but can be a valuable chance for some informal one-on-one time with a respected professional. 

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P.R.I.S.M Workshop Day

Join us in-person on Sunday, July 21, for an exciting workshop day facilitated by the P.R.I.S.M. Spine and Joint team, P.R.I.S.M. Physiolign Primer: Immersive Education, Skills, and Support for the EDS & HSD Patient, Family Member, and Care Team.

This conference track will offer the opportunity to practice skills to restore and maintain alignment and muscle tone, reduce pain and fatigue, and more; attendees are able to actively participate in the workshop exercises, or simply observe and learn.  

Visit our interactive agenda to learn more about each workshop session and see our ticket options. This conference track is available for in-person attendees only, register for a Workshops Day ticket to attend. 

Workshop topics include: 

  • Spine and Joints Framework and Evaluation 
  • Alignment, Stability, and Movement 
  • Optimizing Mindset, Relationships, and Clinical Care 
  • POTS, MCAS, and Evidence Based Ayurvedic Strategies 
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The Golden Zebra Reception

Join us at The Golden Zebra Reception, a dazzling networking affair, where you’ll have the opportunity to mingle with fellow conference attendees from all over the globe, all while indulging in delicious food and refreshing drinks. Immerse yourself in live music, ten-pin bowling, an enticing silent auction, and an exclusive Meet & Greet with Dr. Camille Schrier, PharmD, Miss America 2020!

Limited tickets are available for this unique event, offering you the chance to meet like-minded zebras and make meaningful connections. Your participation directly funds the ongoing efforts of the Ehlers-Danlos Society, enhancing the lives of those affected by EDS and HSD. 

community awards

Community Choice

Awards

The Ehlers-Danlos Society Awards is an annual celebration of individuals who have made an impact and worked for change for those living with, and affected by, EDS, HSD, and related conditions. We welcome you to nominate individuals to receive each of our Community Choice Awards: Community Advocate, and Healthcare Professional. 

Nominations must be submitted by May 31, 2024, and the winners will be announced live during our 2024 Global Learning Conference. 

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Zebras Got

Talent

We invite all artists and creators to participate in the “Zebras Got Talent” exhibition by submitting their original work! 

Zebras Got Talent is a hybrid exhibition that will showcase the creativity of those in our community. Those joining us in person will have the opportunity to perform their talent live during the conference, and all entries will be uploaded for attendees to view and vote for their favorite on our event app, Whova. 

Talent submissions close on June 28, 2024. 

Submissions could include a talent of your choice such as: 

  • Creative Writing (eg. poem, fictional story) 
  • Painting 
  • Drawing 
  • Graphic Design 
  • Photography 
  • Dance 
  • Video Performance 
  • Music 

1st place WINNER will receive EITHER: a free pass to a virtual Ehlers-Danlos Society event, or a 50% discount to an in-person EDS Society event, valid for any event in 2024 or 2025.
2nd place WINNER will receive a 25% discount on any virtual or in-person Ehlers-Danlos Society event (adult or child), valid for any event in 2024 or 2025.
3RD place WINNER will receive a 15% discount on any virtual or in-person Ehlers-Danlos Society event (adult or child), valid for any event in 2024 or 2025. 

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 Zebra Strong

Emporium 

Join us at the Zebra Strong Emporium – A Marketplace with a Mission

During the 2024 Global Learning Conference in Philadelphia, PA, USA,  exhibitors have the opportunity to sell their products to an international audience, all gathered for a common cause from July 17-21, 2024. Whether you make soaps, jewelry, candles, crafts — whatever your passion, secure your table at our Emporium! 

Be part of a mission-driven event where 20% of your sales will contribute to The Ehlers-Danlos Society’s vital mission.

Registration Options

Choose from the virtual, in-person, and add-on options below! Please note The Ehlers-Danlos Society’s Event Code of Conduct Policy, which all attendees, speakers, exhibitors, organizers, and volunteers are required to abide by.

In order to register for our events, you need to be logged in to a website account. Once you are logged in, you will have the ability to add tickets from our events pages to your basket and to purchase.
Please click here to log in/register for your Ehlers-Danlos Society website account. Once you have logged in, please revisit this page to purchase your tickets. Please note, you will not be redirected automatically, but can find this page under our Events section, and Upcoming Events.

Tickets

The numbers below include tickets for this event already in your cart. Clicking "Get Tickets" will allow you to edit any existing attendee information as well as change ticket quantities.
Early Bird Adult - $100 off full ticket price!
  • A saving of $100 off the full price adult ticket. Ticket price will increase to $550 from May 1, 2024.
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 17, 18, 19 and 20, 2024
  • Welcome reception and orientation
  • Morning & afternoon refreshments, and lunch on July 17, 18, 19 and 20
USD $ 450.00
Early Bird - Rarer Types Day - SUNDAY
  • A saving of 20% off the full price adult ticket. Ticket price will increase to $199 from May 1, 2024.
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 21, 2024
  • Morning & afternoon refreshments, and lunch on July 21
USD $ 159.00
Support Group/Charity Representative
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 17, 18, 19 and 20, 2024
  • Welcome reception and orientation
  • Morning & afternoon refreshments, and lunch on July 17, 18, 19 and 20
USD $ 350.00
Carer
  • Ages 18 and over. One carer ticket available per full paying adult. Ticket price includes:
  • All sessions on July 17, 18 , 19 and 20, 2024
  • Welcome reception and orientation
  • Morning & afternoon refreshments, and lunch on July 17, 18 , 19 and 20
USD $ 350.00
Student
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 17, 18, 19 and 20, 2024
  • Welcome reception and orientation
  • Morning & afternoon refreshments, and lunch on July 17, 18, 19 and 20
USD $ 375.00
Age 18 and Under
  • Must be accompanied by a parent or guardian over the age of 18. Please note that some main event presentations contain information that might not be suitable for under 18's, viewing is at the parent or guardians discretion.
  • Ticket price includes:
  • All sessions on July 17, 18 , 19 and 20, 2024
  • Welcome reception and orientation
  • Morning & afternoon refreshments, and lunch on July 17, 18 , 19 and 20
  • *Photo ID may be requested at the registration desk. This ticket type does not include entry to the Junior Zebra’s Program. Please add a FREE ticket on if you wish to also attend the Junior Zebra’s Program, but please note that most sessions run in parallel with the main event.
USD $ 350.00
Junior Zebras: Kids
  • We are delighted to offer limited free places for the Junior Zebras program at the 2024 Global Learning Conference, please complete purchase of this free ticket to secure your place.
  • Junior Zebras must be accompanied by a registered adult, please provide the registered parent/guardian's name in the name field of the registration form.
  • Junior Zebra: Kids ticket covers admission only, registrants are responsible for their own travel and accommodation costs.
  • Ticket purchasers must be 18 and over. Ticket price includes:
  • Access to attend all in person Junior Zebras Kids sessions live on July 18, 19 and 20, 2024
  • Orientation and afternoon refreshments on July 18, 19 and 20, 2024
  • Morning & afternoon refreshments, and lunch on July 18, 19 and 20, 2024
USD $ 0.00
Junior Zebras: Teens
  • We are delighted to offer limited free places for the Junior Zebras program at the 2024 Global Learning Conference, please complete purchase of this free ticket to secure your place.
  • Junior Zebras must be accompanied by a registered adult, please provide the registered parent/guardian's name in the name field of the registration form.
  • Junior Zebra: Kids ticket covers admission only, registrants are responsible for their own travel and accommodation costs.
  • Ticket registrants must be 18 and over. Ticket price includes:
  • Access to attend all in person Junior Zebras Kids sessions live on July 18, 19, 20, 2024
  • Orientation and afternoon refreshments on July 18, 19, 20
  • Morning & afternoon refreshments, and lunch on July 18, 19,
  • Morning refreshments and lunch on July 20
USD $ 0.00
Virtual Ticket
  • Ticket price includes:
  • Online access to sessions on July 17, 18, 19 and 20, 2024
  • Lifetime on-demand access to the session recordings, available starting seven days after the event
USD $ 150.00
Unlimited
Virtual Ticket - Rarer Types Day (Sunday ONLY)
  • Ticket price includes:
  • Online access to sessions on July 21, 2024
  • Lifetime on-demand access to the session recordings, available starting seven days after the event
USD $ 50.00
Unlimited
One Day Ticket - WEDNESDAY
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 17, 2024
  • Morning & afternoon refreshments, and lunch on July 17
USD $ 125.00
One Day Ticket - THURSDAY
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 18, 2024
  • Morning & afternoon refreshments, and lunch on July 18
USD $ 199.00
One Day Ticket - FRIDAY
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 19, 2024
  • Morning & afternoon refreshments, and lunch on July 19
USD $ 199.00
One Day Ticket - SATURDAY
  • Ages 18 and over. Ticket price includes:
  • All sessions on July 20, 2024
  • Morning & afternoon refreshments, and lunch on July 20
USD $ 199.00
Workshops Ticket - SUNDAY
  • Ages 18 and over. Ticket price includes:
  • All workshop sessions on July 21, 2024
  • Morning & afternoon refreshments, and lunch on July 21
USD $ 199.00
CME/CEU/CE Add-On
  • Please note: The CME/CEU/CE Add-On must be purchased in conjunction with a virtual or in-person ticket. This add-on alone will not grant access to the conference
  • Claim CME/CEU/CE credits approved by Project ECHO at The University of New Mexico, for the sessions you attend live (either in-person or virtually) during the event.
USD $ 75.00
Unlimited
Pay It Forward
  • At The Ehlers-Danlos Society, we want to ensure that all members of our community can access our events. For this reason, we are operating a Pay-It-Forward ticket system, giving the option for those purchasing tickets from our website to contribute to an additional ticket for a member of our community who would otherwise be restricted from attending due to financial barriers. We know that not everybody is able to do this, but if you can spare even a few dollars, it all adds up.
  • Please note: Pay-It-Forward tickets are currently only available on selected events. Pay It Forward tickets are provided by The Society respectfully to those who may be financially disadvantaged and would not be able to attend the event without support. By contributing towards this ticket type you are agreeing to gift this opportunity to a community member. We cannot share the name of the person who will receive this gift, but your help and support will be greatly appreciated.
USD $ 0.00
Unlimited
Gala Dinner Add-On
  • Ticket includes Gala Dinner, Awards Ceremony, and Zebras got Talent show. Suitable for all ages.
USD $ 70.00
Golden Zebra Reception Ticket
  • Ticket includes live music, an exclusive meet and greet with Dr. Camille Schrier, PharmD, Miss America 2020, and ten-pin bowling. Suitable for those aged 13 and over.
USD $ 150.00
Golden Zebra Reception Children's Ticket
  • Ticket includes live music, an exclusive meet and greet with Dr. Camille Schrier, PharmD, Miss America 2020, and ten-pin bowling. Suitable for those aged 12 and under.
USD $ 75.00