EDS ECHO Summit: Hypermobility Spectrum Disorders

The EDS ECHO Summit: Hypermobility Spectrum Disorders is a virtual event that will take place on April 1, 2023, and is suitable for healthcare professionals, members of the community, their families, and caregivers.

The event will cover all aspects of the hypermobility spectrum disorders with presentations, research, and management information from leading experts.

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.

Four types of HSD are described, based on the type of joint hypermobility present.

  • Generalized HSD (G-HSD)
  • Peripheral HSD (P-HSD)
  • Localized HSD (L-HSD)
  • Historical HSD (H-HSD)

A comprehensive event program will include presentations on topics including:

  • Pediatric and Adolescent Types of HSD
  • Movement Therapy and Training
  • Dental and Facial Pain in HSD
  • Lifestyle Strategies and Self-Pacing
  • Coping With Autonomic Symptoms

This event is suitable for healthcare professionals, people who have been diagnosed with or seeking a diagnosis of hypermobility spectrum disorder (HSD) or a type of HSD listed above, their families, and caregivers. This event will also be suitable for those previously diagnosed with hypermobility syndrome or joint hypermobility syndrome.

This event has been approved for up to 5.5 CME/CEU/CE credits for healthcare professionals to claim for sessions attended LIVE.

Registration is Now Open!

Choose from the options below to register for the EDS ECHO Summit Series: Hypermobility Spectrum Disorders event.


The numbers below include tickets for this event already in your cart. Clicking "Get Tickets" will allow you to edit any existing attendee information as well as change ticket quantities.
Virtual Ticket
  • Ticket purchasers must be 18 and over. Under 18's may watch with parents or guardians under their supervision.
  • Ticket price includes:
  • Access to view all sessions live on April 1, 2023.
  • Lifetime on-demand access to the recordings of the event, available to ticket holders to watch from April 2, 2023.
$ 50.00
  • Please note: You must purchase a virtual ticket in addition to the CME Add-On in order to attend this event
  • Add this option if you are a healthcare professional and you would like to claim continued medical/educational credits.
  • Available to claim for all sessions viewed live.
$ 50.00

Can’t attend live? Register anyway and we’ll send you a link to the full recordings the day after the event airs.

If you have any questions, do contact us via events@ehlers-danlos.com

View the Event Agenda Below!


Scholarship Applications are Now Open!

Thanks to the generosity of our donors, we are able to offer a number of scholarship places for this event. Applications will be accepted through March 2, 2023.

Community Voices

Would you like to share your HSD story at this EDS ECHO Summit event? We are currently accepting applications for Community Voices, which are 10 minute sessions that share an aspect of the diagnostic journey, symptoms, and symptom management. To apply to speak at this event, and future 2023 events, visit the link below.

Thank You to Our Event Sponsors!

Sponsor This Event

Sponsorships are available for this conference; please see our prospectus and commitment form, or contact the development team at giving@ehlers-danlos.com.


In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO_Commendation

AMA Designation Statement
Project ECHO® designates this live activity for up to 5.5 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an eligible company.

None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Alan Hakim, Dr. Louise Warburton, Prof. Jane Simmonds, Jeannie Di Bon, Annabel Hawker, Aiko Callahan, Dr. Rebecca Schaffer, Dr. Jessica Eccles, Jennifer Smallridge.

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