EDS ECHO Summit: Hypermobility Spectrum Disorders

The EDS ECHO Summit: Hypermobility Spectrum Disorders is a virtual event that will take place on April 1, 2023, and is suitable for healthcare professionals, members of the community, their families, and caregivers.

The event will cover all aspects of the hypermobility spectrum disorders with presentations, research, and management information from leading experts.

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of HSD.

Four types of HSD are described, based on the type of joint hypermobility present.

  • Generalized HSD (G-HSD)
  • Peripheral HSD (P-HSD)
  • Localized HSD (L-HSD)
  • Historical HSD (H-HSD)

A comprehensive event program will include presentations on topics including:

  • Pediatric and Adolescent Types of HSD
  • Movement Therapy and Training
  • Dental and Facial Pain in HSD
  • Lifestyle Strategies and Self-Pacing
  • Coping With Autonomic Symptoms

This event is suitable for healthcare professionals, people who have been diagnosed with or seeking a diagnosis of hypermobility spectrum disorder (HSD) or a type of HSD listed above, their families, and caregivers. This event will also be suitable for those previously diagnosed with hypermobility syndrome or joint hypermobility syndrome.

This event has been approved for up to 5.5 CME/CEU/CE credits for healthcare professionals to claim for sessions attended LIVE. Please note that to claim your credits, there are two steps that need to be completed within a specific timeframe. This information will be emailed, closer to the event, to relevant ticketholders. The credits can only be claimed after completing both steps. Failure to do so may result in not being able to claim credits. For more information, please contact [email protected].

Registration is Now Open!

Choose from the options below to register for the EDS ECHO Summit Series: Hypermobility Spectrum Disorders event.

Registration for this event is now closed. The recordings from this event will be made available for public viewing on our website six weeks after the event airs.

If you have any questions, do contact us via [email protected]

View the Event Agenda Below!


Community Voices

Would you like to share your HSD story at this EDS ECHO Summit event? We are currently accepting applications for Community Voices, which are 10 minute sessions that share an aspect of the diagnostic journey, symptoms, and symptom management. To apply to speak at this event, and future 2023 events, visit the link below.

Thank You to Our Event Sponsors!

Body Braid

The Body Braid’s Core Body Braid is a posture support which acts as external connective tissue which helps to reinforce the body’s internal connective tissue. The Core Braid’s soft, elastic fabric bands spiral around the body, engaging the core and gently aligning different body parts into an integrated whole.

767 Stone Church Road,
Ontario K0J 2AO
(416) 804-2110 | [email protected]https://bodybraid.com/



Bauerfeind is a leading global manufacturer of medical and sports products including orthopedic braces and supports, as well as insoles and compression products.

The company relies on combining an understanding of clinical needs with an unparalleled expertise in technology and manufacturing – accumulated over nine decades. Bauerfeind is about passion for quality and innovation. The result is patented, award-winning quality products and services that make a difference for EDS patients with hypermobility of the joints. Bauerfeind’s line of premium braces and supports are recommended to patients with Ehlers-Danlos syndrome because of their comfort and lightweight low-profile design. Our braces support and stabilize the joints and are anatomically contoured with a special knit fabric that provides medical-grade compression and more breathability for all-day wearing comfort.

75 14th St NE, Suite 2350,
Atlanta, GA 30309
United States

+1 800 423 3405 | [email protected] | www.bauerfeind.com


Sponsor This Event

Sponsorships are available for this conference; please see our prospectus and commitment form, or contact the development team at [email protected].


In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO_Commendation

AMA Designation Statement
Project ECHO® designates this live activity for up to 5.5 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an eligible company.

None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

Prof. Lara Bloom, Dr. Alan Hakim, Stacey Simmonds, Sacha Aziz, Dr. Sarah Schwartz, Constance O’Connor, Dr. Louise Warburton, Prof. Jane Simmonds, Jeannie Di Bon, Annabel Hawker, Dr. Aiko Callahan, Dr. Leslie Russek, Shani Weber, Dr. Rebecca Schaffer, Dr. Jessica Eccles, Jennifer Smallridge, Sarah Tompkins , Dr. Surendra Marur, Joe Holdsworth.

The following planners / presenters listed below have disclosed that they have a relevant financial relationship with an ineligible company.

Nature of RelationshipName of Ineligible Company
Dr. Clair FrancomanoAdvisor, ConsultantKyani International, Acer Therapeutics, Lan Health

All of the relevant financial relationships listed for this individual have been mitigated.

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