EDS ECHO Summit Series: Pediatric & Adolescent Concerns in EDS & HSD
October 15, 2022
The Ehlers-Danlos Society, in association with the International Consortium on EDS and HSD, and members of the AHEAD – Action for Children, Adolescents, & Young People with HSD & EDS Accurate Diagnosis coalition, is hosting a dedicated EDS ECHO Summit event focusing on pediatric and adolescent concerns in the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). Join us as leading experts discuss the diagnosis of EDS and HSD and a range of presentations of ill-health in younger people.
Who is this event for?
This one-day event is suitable for both healthcare professionals, and members of the EDS and HSD community, their families, and caregivers. It will take place on October 15, 2022, from 08:25 AM – 3:00 PM Eastern Time. (Please use your preferred time zone converter to find the correct times in your location)
This event has been approved for up to 5.25 CME/CEU/CE Credits, which will be available for health professionals to claim for sessions that are viewed LIVE.
The objectives of this event are to:
- Recognize and more confidently diagnose hypermobility spectrum disorder (HSD) and its associated conditions in children and adolescents.
- Understand when and how to assess for the types of Ehlers-Danlos syndrome (EDS) in younger people.
- Appreciate the complexity of presentations in EDS and HSD and how these may inappropriately be thought factitious, and the impact of this.
- Increase awareness of unconscious bias and its impact on clinical practice.
The day will cover topics including:
- Pediatric criteria updates for hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD)
- Comorbidities in pediatrics
- Fractures, bruising and bleeding
- Medicalized child abuse: A focus on empirical evidence and navigating concerns with healthcare
How can I watch this event?
The event will take place online via Zoom Webinar. Once registered, you will be sent information about how to join this event live.
If you have questions please email events@ehlers-danlos.com.
Registration is Now Open!
Choose from the options below to register for the EDS ECHO Summit Series: Pediatric Concerns in EDS & HSD event.
Can’t attend live? Register anyway and we’ll send you a link to the full recordings the day after the event airs.
Presentation Title |
Presenter(s) |
| Session 1: Children and Adolescents with Hypermobility Spectrum Disorders and Ehlers-Danlos Syndromes | Chair: Donna Sullivan |
| Welcome to Session 1 | Donna Sullivan |
| Pediatric Joint Hypermobility: 2022 Diagnostic Framework | Dr. Louise Tofts |
| Comorbidities in Pediatric Joint Hypermobility | Dr. Verity Pacey |
| Further Evaluation and Differential Diagnosis For the Child Who May Have Hypermobile EDS (hEDS) | Dr. Ellen Elias |
| Q&A | |
| Session 2: Fractures and Bleeding | Chair: Dr. Alan Hakim |
| Welcome to Session 2 | Dr. Alan Hakim |
| Assessment of Fractures, Bruising and Bleeding in Infants | Dr. Sarah Schwartz |
| The Genetic Evaluation for Pediatric Patients Presenting with Fractures and Bleeding | Dr. Ellen Elias |
| The Summary of the Current Research Evidence for Fracture and Bleeding in Paediatric Generalised Joint Hypermobility and HSD | Dr. Louise Tofts |
| Q&A | |
| Session 3: Medicalized Child Abuse: A Focus on Empirical Evidence and Advice on Navigating Concerns with Healthcare Professionals, with Recommendations for Mitigating False Accusations | Chair: Donna Sullivan |
| Welcome to Session 3 | Donna Sullivan |
| Common Themes Evident in the UK in Relation to FII | Emma Louise Williams |
| What to Expect When You Are Suspected: Navigating the Unexpected Waters of False Allegations | Rana Tyson |
| Practical Advice for Parents and Carers Regarding Avoiding False Allegations of Fabricated or Induced Illness (FII) and Over-Medicalisation | Emma Louise Williams |
| Q&A | |
| Session 4: Unconcious Bias | Chair: Dr. Alan Hakim |
| Welcome to Session 4 | Dr. Alan Hakim |
| Biases in Healthcare: An Overview for Individuals with EDS/HSD and Co-morbid Disorders | Dr. Anne Maitland |
| The Long and Winding Road… Reducing Unconcious Bias | Dr. Philip Bull |
| Reflections on Unconscious Bias | Dr. Alan Hakim |
| Panel Discussion |
Sponsor This Event
Sponsorships are available for this conference; please see our prospectus and commitment form, or contact the development team at giving@ehlers-danlos.com
In support of improving patient care, this activity has been planned and implemented by the Ehlers-Danlos Society and Project ECHO. Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
AMA Designation Statement
Project ECHO® designates this live activity for up to 5.25 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Disclosure Statement
Project ECHO®, in compliance with the ACCME Standards for Integrity and Independence in Accredited Continuing Education, requires that anyone who is in a position to control the content of an educational activity disclose all relevant financial relationships they have had within the last 24 months with an eligible company.
None of the planners and presenters for this educational activity have relevant financial relationship(s) to disclose with ineligible companies whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.
Prof. Lara Bloom, Stacey Simmonds, Sacha Aziz, Dr. Alan Hakim, Dr. Ellen Elias, Dr. Philip Bull, Donna Sullivan, Rana Tyson, Emma Louise Williams, Dr. Sarah Schwartz, Dr. Verity Pacey
The following planners/presenters listed below have disclosed that they have a financial relationship with an ineligible company.
| Nature of Relationship | Name of Ineligible Company | |
| Dr. Anne Maitland | Speaker | Blue Print Medicines |
| Dr. Louise Tofts | Researcher, Advisor | Biomarin |
| Dr. Clair Francomano | Consultant, Advisor | Acer Therapeutics, Kyani International |
All of the relevant financial relationships listed for these individual(s) have been mitigated.