EDS ECHO Summit Series: Fatigue – Causes and Management
October 21, 2023
Around three-quarters of people with a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) report some degree of persistent fatigue. Persistent or chronic fatigue is the medical term used to describe extreme tiredness or a lack of energy that prevents a person from functioning normally. Chronic is the term used when fatigue is persistent for more than six months – it may be constant, have bad days and better days, or keep recurring – all with a marked impact on a person’s quality of life.
The main symptom is tiredness, but it is much more than the normal tiredness that every person experiences. People with persistent fatigue often describe it as a total exhaustion of every muscle in their body and/or ‘brain fog’ i.e., problems with concentration, thinking, and memory.
The EDS ECHO Summit Series: Fatigue – Causes and Management is a virtual event that will take place on October 21, 2023, and is suitable for healthcare professionals, members of the community, their families, and caregivers. The event will cover all aspects of fatigue causes and management in EDS and HSD, with presentations, research, and management information from leading experts.
A comprehensive event program will include presentations on topics including:
- Understanding the Causes of Fatigue
- General Principles of Fatigue Management
- Pacing, Exercise, and Managing Daily Activities
- Sleep Quality and Sleep Disturbance
- Sleep Apnea
- Diet and Fatigue
- Gut Health and Brain Fog
- Mast Cell Disorders
Purchase a ticket to watch this event on Zoom, or apply for a scholarship below. If you have any questions please contact our events team.