EDS ECHO Summit Series: Fatigue – Causes and Management

October 21, 2023

Around three-quarters of people with a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) report some degree of persistent fatigue. Persistent or chronic fatigue is the medical term used to describe extreme tiredness or a lack of energy that prevents a person from functioning normally. Chronic is the term used when fatigue is persistent for more than six months – it may be constant, have bad days and better days, or keep recurring – all with a marked impact on a person’s quality of life. 

The main symptom is tiredness, but it is much more than the normal tiredness that every person experiences. People with persistent fatigue often describe it as a total exhaustion of every muscle in their body and/or ‘brain fog’ i.e., problems with concentration, thinking, and memory. 

The EDS ECHO Summit Series: Fatigue – Causes and Management is a virtual event that will take place on October 21, 2023, and is suitable for healthcare professionals, members of the community, their families, and caregivers. The event will cover all aspects of fatigue causes and management in EDS and HSD, with presentations, research, and management information from leading experts.

A comprehensive event program will include presentations on topics including:

  • Understanding the Causes of Fatigue
  • General Principles of Fatigue Management
  • Pacing, Exercise, and Managing Daily Activities
  • Headaches
  • Dysautonomia
  • Sleep Quality and Sleep Disturbance
  • Sleep Apnea
  • Diet and Fatigue
  • Gut Health and Brain Fog
  • Mast Cell Disorders

Purchase a ticket to watch this event on Zoom, or apply for a scholarship below. If you have any questions please contact our events team.

Registration Options


The numbers below include tickets for this event already in your cart. Clicking "Get Tickets" will allow you to edit any existing attendee information as well as change ticket quantities.
Virtual Ticket
  • Ticket purchasers must be 18 and over. Under 18's may watch with parents or guardians under their supervision.
  • Ticket price includes:
  • Access to view all sessions live on October 21, 2023.
  • Lifetime on-demand access to the recordings of the event, available to ticket holders to watch from October 22, 2023.
USD $ 50.00

Can’t attend live? Attendees get lifetime on-demand access to the event content after the event ends!

Scholarship Applications Now Open

Thanks to the generosity of our donors, we are able to offer a number of scholarship places for this event. To apply for a scholarship please click below.

Sponsorship Opportunities

Sponsorships are available for this conference, with virtual and in-person package options. Please see our sponsorship prospectus and commitment form, or contact our team directly on [email protected] to discuss sponsorship opportunities.

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