Genetically Defined EDS: Strategies and Solutions for Unmet Needs is a hybrid event being held in Ghent, Belgium on August 30-31, 2023. We invite members from our community who live with or are interested in one of the following types of Ehlers-Danlos syndrome to share their unmet needs surrounding the condition, for consideration as a discussion topic during the event:

  • Classical EDS (cEDS)
  • Classical-like EDS (clEDS)
  • Cardiac-valvular EDS (cvEDS)
  • Vascular EDS (vEDS)
  • Arthrochalasia EDS (aEDS)
  • Dermatosparaxis EDS (dEDS)
  • Kyphoscoliotic EDS (kEDS)
  • Brittle Cornea Syndrome (BCS)
  • Spondylodysplastic EDS (spEDS)
  • Musculocontractural EDS (mcEDS)
  • Myopathic EDS (mEDS)
  • Periodontal EDS (pEDS)

"*" indicates required fields

Name*
Which type(s) of EDS do you wish to address?*
Would you be interesting in joining the event virtually to discuss these unmet needs with the healthcare professionals and fellow community members?*

I hereby authorize The Ehlers-Danlos Society to publish my feedback, written by me, for use in The Ehlers-Danlos Society’s print, online, and video-based publications.

I hereby release and hold harmless The Ehlers-Danlos Society from any reasonable expectation of privacy or confidentiality associated with the content specified above.

I further acknowledge that my participation is voluntary and that I will not receive financial compensation of any type associated with the taking or publication of the submitted content in Ehlers-Danlos Society marketing materials or other Ehlers-Danlos Society publications. I acknowledge and agree that publication of said content confers no rights of ownership or royalties whatsoever.

I hereby release The Ehlers-Danlos Society, its contractors, its employees, and any third parties involved in the creation or publication of informational or marketing materials, and from liability for any claims by me or any third party in connection with my participation.

Terms and Conditions*

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