Genetically Defined EDS: Strategies and Solutions for Unmet Needs is a hybrid event being held in Ghent, Belgium on August 30-31, 2023. We invite members from our community who live with or are interested in one of the following types of Ehlers-Danlos syndrome to share their unmet needs surrounding the condition, for consideration as a discussion topic during the event:
- Classical EDS (cEDS)
- Classical-like EDS (clEDS)
- Cardiac-valvular EDS (cvEDS)
- Vascular EDS (vEDS)
- Arthrochalasia EDS (aEDS)
- Dermatosparaxis EDS (dEDS)
- Kyphoscoliotic EDS (kEDS)
- Brittle Cornea Syndrome (BCS)
- Spondylodysplastic EDS (spEDS)
- Musculocontractural EDS (mcEDS)
- Myopathic EDS (mEDS)
- Periodontal EDS (pEDS)
