Northwest Genetic Aortopathy & Arteriopathy Program Regional Symposium on Marfan Syndrome, Loeys-Dietz, and Vascular Ehlers-Danlos Syndrome

Northwest Genetic Aortopathy & Arteriopathy Program Regional Symposium on Marfan Syndrome, Loeys-Dietz, and Vascular Ehlers-Danlos Syndrome

May 11, 2024

The Northwest Genetic Aortopathy & Arteriopathy Program Regional Symposium on Marfan Syndrome, Loeys-Dietz, and Vascular Ehlers-Danlos Syndrome is an educational opportunity for healthcare professionals or individuals and families living with Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions.

This event includes a break out session and Creating Connections luncheon, which enables attendees to network with the speakers and connect with other people in the area who also have their condition.

If you have any questions, please contact our events team.

Registration Options

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Please click here to log in/register for your Ehlers-Danlos Society website account. Once you have logged in, please revisit this page to purchase your tickets. Please note, you will not be redirected automatically, but can find this page under our Events section, and Upcoming Events.

Tickets

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Venue Details

The Robertson Collaborative Life Sciences Building is located on S Moody Avenue, close to South Waterfront.

Robertson Collaborative Life Sciences Building
2730 S Moody Ave,

Portland, OR
97201, USA

View the Exciting Agenda!

  8:00am Registration
8:15-9:00am Breakfast
9:00am Welcome Remarks – Dr. Shalhub
Session I: 
9:10am Aortic Genetic Counseling Erika Jackson, Genetic Counseling
9:20am Aortic Biology 101 and Cell Signaling Lynn Sakai, Genetic Science
9:40am Orthodontic Considerations for Connective Tissue Disorders Judah Garfinkel, Orthodontics
10:00am Integrative Pain Management for Inherited Connective Tissue Disorders Alena Guggenheim, Pain
10:20am Panel Discussion All Above Speakers
10:40am Morning Break
Session II: 
11:00am Spine Operations in Connective Tissue Disorders Michelle Welborn, Orthopedics
11:20am Pediatric Lens Dislocation and Vision Development Lorri Wilson, Eye lens dislocation
11:40am Retinal Detachment in Marfan’s Disease Benjamin Young, Eye Retina
11:50am Glaucoma in Connective Tissue Disorders Michael Gale, Eye Glaucoma
12:00pm Panel Discussion All Above Speakers
12:20-1:20pm Lunch 
Session III:
1:20pm Medical Management in Genetic Aortopathy Luciana Young, Peds Cardiology
1:40pm Pregnancy Planning and Perinatal Care Lidija McGrath, Adult Cardiology
2:00pm Surgical Repair from the Aortic Root to the Arch Castigliano Bhamidipati, Cardiothoracic Surgery
2:20pm Vascular Surgery Repair Options Sherene Shalhub, Vascular Surgery
2:40pm Minimally Invasive Endovascular Options Claire Kaufman, Interventional Radiology
3:00pm Panel Discussion All Above Speakers
3:20pm Acknowledgements
3:30pm Happy Hour
4:30pm Adjourn

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