Externally Led Patient-Focused Drug Development Meeting Presentation PDFs

TIME (EST): |
SESSION & TITLE: |
SPEAKER(S): |
09:30 – 09:40 | Welcome & Housekeeping | Lara Bloom |
09:40 – 09:55 | Introduction on hEDS and HSD | Dr. Clair Francomano |
09:55 – 10:05 | Welcome from FDA staff | Dr. Cynthia Rothblum-Oviatt |
SESSION 1: The Diagnostic Odyssey |
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10:05 – 10:20 | An introduction to the Diagnostic Odyssey | Dr. Colin Halverson |
10:20 – 10:30 | Diagnostic Odyssey – hEDS | Emily Rubenstein |
10:30 – 10:40 | Diagnostic Odyssey – pOTS | Caro Frederiks |
10:40 – 10:50 | Diagnostic Odyssey – MCAS | Danielle Vaccaro |
10:50 – 11:00 | Diagnostic Odyssey – Pain | Brianna Cardenas |
11:00 – 12:00 | Panel Q&A | |
SESSION 2: Living with hEDS and HSD |
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13:00 – 13:15 | Introduction on Living with hEDS and HSD | Dr. Alan Hakim |
13:15 – 13:25 | Living with hEDS and HSD – PoTS | Francie Fitzgerald |
13:25 – 13:35 | Living with hEDS and HSD – MCAS | Courtney Rabb |
13:35 – 13:45 | Living with hEDS and HSD – Pain | Maggie Buckley |
13:45 – 13:55 | Living with hEDS Including GI Issues | Harry Radcliffe |
13:55 – 14:05 | Living with hEDS and HSD as a Caregiver and Parent | Dr. Ashley Denmark |
14:05 – 15:05 | Panel Q&A | |
SESSION 3: Treatments for EDS and HSD |
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15:25 – 15:40 | Introduction on Current Treatment Landscape | Dr. Anne Maitland |
15:40 – 15:50 | MCAS – Treatment possibilities through research | Scarlett Eagle |
15:50 – 16:00 | Treatment: Pain, An Integrated Approach | Dr. Cortney Gensemer |
16:00 – 16:10 | Treatment: GI | Dr. Isabelle Brock |
16:10 – 16:20 | Treatment: Adaptive Aids & Devices to Help with Symptoms | Mars Lombardi |
16:20 – 17:20 | Panel Q&A | |
17:20 – 17:30 | Summarise & Close | Lara Bloom & Clair Francomano |