Externally Led Patient-Focused Drug Development Meeting Presentation PDFs

Externally Led Patient-Focused Drug Development Meeting - October 31, 2023

Externally Led Patient-Focused Drug Development Meeting

Presentation PDFs

TIME (EST):

SESSION & TITLE:

SPEAKER(S):

09:30 – 09:40 Welcome & Housekeeping Lara Bloom
09:40 – 09:55 Introduction on hEDS and HSD Dr. Clair Francomano
09:55 – 10:05 Welcome from FDA staff Dr. Cynthia Rothblum-Oviatt

SESSION 1: The Diagnostic Odyssey

10:05 – 10:20 An introduction to the Diagnostic Odyssey Dr. Colin Halverson
10:20 – 10:30 Diagnostic Odyssey – hEDS Emily Rubenstein
10:30 – 10:40 Diagnostic Odyssey – pOTS Caro Frederiks
10:40 – 10:50 Diagnostic Odyssey – MCAS Danielle Vaccaro
10:50 – 11:00 Diagnostic Odyssey – Pain Brianna Cardenas
11:00 – 12:00 Panel Q&A

SESSION 2: Living with hEDS and HSD

13:00 – 13:15 Introduction on Living with hEDS and HSD Dr. Alan Hakim
13:15 – 13:25 Living with hEDS and HSD – PoTS Francie Fitzgerald
13:25 – 13:35 Living with hEDS and HSD – MCAS Courtney Rabb
13:35 – 13:45 Living with hEDS and HSD – Pain Maggie Buckley
13:45 – 13:55 Living with hEDS Including GI Issues Harry Radcliffe
13:55 – 14:05 Living with hEDS and HSD as a Caregiver and Parent Dr. Ashley Denmark
14:05 – 15:05 Panel Q&A

SESSION 3: Treatments for EDS and HSD

15:25 – 15:40 Introduction on Current Treatment Landscape Dr. Anne Maitland
15:40 – 15:50 MCAS – Treatment possibilities through research Scarlett Eagle
15:50 – 16:00 Treatment: Pain, An Integrated Approach Dr. Cortney Gensemer
16:00 – 16:10 Treatment: GI Dr. Isabelle Brock
16:10 – 16:20 Treatment: Adaptive Aids & Devices to Help with Symptoms Mars Lombardi
16:20 – 17:20 Panel Q&A
17:20 – 17:30 Summarise & Close Lara Bloom & Clair Francomano

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