Externally Led Patient-Focused Drug Development Meeting Presentation PDFs

Externally Led Patient-Focused Drug Development Meeting - October 31, 2023

Externally Led Patient-Focused Drug Development Meeting

Presentation PDFs

TIME (EST):

SESSION & TITLE:

SPEAKER(S):

09:30 – 09:40Welcome & HousekeepingLara Bloom
09:40 – 09:55Introduction on hEDS and HSDDr. Clair Francomano
09:55 – 10:05Welcome from FDA staffDr. Cynthia Rothblum-Oviatt

SESSION 1: The Diagnostic Odyssey

10:05 – 10:20An introduction to the Diagnostic OdysseyDr. Colin Halverson
10:20 – 10:30Diagnostic Odyssey – hEDSEmily Rubenstein
10:30 – 10:40Diagnostic Odyssey – pOTSCaro Frederiks
10:40 – 10:50Diagnostic Odyssey – MCASDanielle Vaccaro
10:50 – 11:00Diagnostic Odyssey – PainBrianna Cardenas
11:00 – 12:00Panel Q&A

SESSION 2: Living with hEDS and HSD

13:00 – 13:15Introduction on Living with hEDS and HSDDr. Alan Hakim
13:15 – 13:25Living with hEDS and HSD – PoTSFrancie Fitzgerald
13:25 – 13:35Living with hEDS and HSD – MCASCourtney Rabb
13:35 – 13:45Living with hEDS and HSD – PainMaggie Buckley
13:45 – 13:55Living with hEDS Including GI IssuesHarry Radcliffe
13:55 – 14:05Living with hEDS and HSD as a Caregiver and ParentDr. Ashley Denmark
14:05 – 15:05Panel Q&A

SESSION 3: Treatments for EDS and HSD

15:25 – 15:40Introduction on Current Treatment LandscapeDr. Anne Maitland
15:40 – 15:50MCAS – Treatment possibilities through researchScarlett Eagle
15:50 – 16:00Treatment: Pain, An Integrated ApproachDr. Cortney Gensemer
16:00 – 16:10Treatment: GIDr. Isabelle Brock
16:10 – 16:20Treatment: Adaptive Aids & Devices to Help with SymptomsMars Lombardi
16:20 – 17:20Panel Q&A
17:20 – 17:30Summarise & CloseLara Bloom & Clair Francomano

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