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My dad went undiagnosed most of his life. It wasn’t until my son (his grandson) and me were diagnosed that was it traced through to my dad. He lived all his life doing what he could when he could for as long as he could. When I told him all the symptoms he was having and all the co-morbidities he had was traced right back to his cEDS, he laughed and said, “Child, that’s what makes us special!” I have tried to live that all my life. I think he would be proud of my abilities to educate all on how I am special and unique. I choose, like him, to not get negative about my syndrome, but do what I can for as long as I can.
Categorized in: In Memoriam