SHE has become something of a Bury celebrity — the spirited young girl with the wide smile for whom a bump in the playground could be fatal.
A ‘ticking timebomb’ is how her parents describe five-year-old Annabelle Griffin’s incurable and life-threatening condition.
The youngster was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) — a collagen deficiency which puts her at risk of the spontaneous rupture of her internal organs and arteries – in December, 2012 aged three.
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.
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