Hypermobile EDS Research
The Hypermobile EDS Genetic Research Network & Global EDS Patient Registry provided the launch pad! Now our community needs YOU to help achieve the next-generation of EDS genetic discovery.
Help hEDS research land on the MOON!
A generous donation launched the Hypermobile EDS Genetic Research Network and Global EDS Patient Registry, establishing the framework to collect the data needed to study the underlying causes of hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) and perform Whole Genome Sequencing for 1000 people over the next year.
To accelerate this research, your help is needed. Boost the hEDS research rocket to the next stage with the hypermobile EDS genome sequencing study to improve EDS/HSD diagnosis, management, and care throughout the world. Join us! And, together, we can make new targeted therapies and new technologies a reality.