Published: 04/03/2016 Tags: Ehlers-Danlos in the News

Grandfather’s hope to raise awareness of potentially life-limiting condition affecting family members

A grandfather is trying to raise awareness of a littleknown genetic disorder which badly affects the health of four family members. He talks to Flossie Mainwaring-Taylor

THERE are, as Alan Thompson rightly points out, countless coffee mornings for the likes of the Alzheimer’s Society, the British Heart Foundation and the numerous cancer charities out there.

And while of course none are less deserving than the other, grandfather-of-four Alan can’t help being frustrated not only by the absence of fundraising get-togethers for Ehlers-Danlos syndrome – but the fact you probably haven’t even heard of it.

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