DISCLAIMER
The Ehlers-Danlos Society acknowledges how hard it is to find an EDS and HSD-friendly specialist across various disciplines globally, so to further our commitment to your access to management and care we have created this list that is populated by professionals submitting their information to our site.
It is important to note that The Ehlers-Danlos Society does not have any ownership or direct financial interest in any of the specific doctors or clinics listed on our EDS-friendly directory. There are no formal listing criteria, and The Ehlers-Danlos Society does not endorse, recommend, or certify any of these physicians.
If you think you have an emergency, call your doctor or emergency services immediately.
The Ehlers-Danlos Society does not guarantee or make any warranties, express or implied, as to the quality of medical advice or care given by any listed physician.
The information listed in the results are based solely upon the data entered by the healthcare professionals listed.
Joseane Brostel Figueiredo David, Médica Clínica e Cardiologista
Clínica Médica, Cardiologia
Clínica Médica Integral Excellence
SGAS 616, conjunto A, lote 116/117, Brasília DF.
Edifício Linea Vitta, bloco C, sala 111/113.
Brasília, DF, 70200760
http://clinicaexcellencebrasilia.com.br
99207-9809
joseanefigueiredo@hotmail.com
Type of clinic: Both NHS and Private
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Estou me dedicando cada vez mais para este propósito!
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Márcia Cristina Matos Macêdo Amorim, MD
Physical Medicina and Rehabilitation
Practice / Clinic 1:
Centro de Saúde Cuidar-se
Avenida Ministro Barreto Sobral, 2131
Sala 804
Aracaju, Sergipe 49026010
Practice / Clinic 2:
Federal University of Sergipe – Hospital Universitário
R. Cláudio Batista, s/n
49060-025
Aracaju, Palestina Aracaju
hhttp://www.dramarciamatos.com.br
+55 (79) 98822 9954
marciafisiatria@gmail.com
Hospital affiliations:
- Hospital Universitário – Federal University of Sergipe
- Hospital Primavera
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I decided to face Ehlers-Danlos Syndrome and its manifestations. Each patient should have the opportunity of develop a treatment program by the physical and rehabilitation medicine. I am a hipermobility Ehler Danlos patient and i love to research, study and share my experience and knowledgment with others.
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Angélle Jácomo, Médica Fisiatra
Fisiatra com área de atuação em dor
Neurocentro
SGAS 915, Edfício Advance, Brasília – DF | CEP: 70.715-900
Sala 39, 2º Subsolo, Asa Sul,
CEP: 70.715-900, Brasília
http://www.angellejacomo.com.br
(061) 99909-1003
contato@angellejacomo.com.br
Type of clinic: Both NHS and Private
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Tenho muitos paciente com SED e gostaria de estudar mais a respeito.
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Carlos Gropen, MD
Pain Medicine, Physical Medicine and Rehabilitation, Internal Medicine
Clinica Dr. Carlos Gropen
EPS Q 709/909 Bl Clínica 21 Centro Médico Julio Adnet
Brasília, DF 70390-095
http://www.gropen.com.br
(061) 98561-0010
grojpen@gmail.com
Type of clinic: Both NHS and Private
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In addition, I have had my own clinical service since 2005, offering specialized treatment in the above-mentioned fields, within an interdisciplinary team.
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Kaliny Cristine Trevezani de Souza, MD
Pediatrician, Pediatric Cardiology
Clínica Médica Integral Excellence
SGAS 616 Conj. A, Lt 116/11 – Ed. Linea Vitta Bl. C Sala 111/113
Brasília, Federal District 70670-502
http://clinicaexcellencebrasilia.com.br/
61992079809
clinicaintegralexcellence@gmail.com
Professional Boards & Affiliations:
- Federal Council of Medicine
- Brazilian Society of Pediatrics
- Brazilian Society for the Study of Pain
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I graduated from Universidade Federal Fluminense, where I also did my residency in Pediatrics, more than ten years ago. I did a Specialization Residency in Pediatric Cardiology at the Hospital Federal de Bonsucesso. In Brasília, I performed a new specialization in Pediatric Cardiology and Pediatric Echocardiography at the Instituto de Cardiologia do Distrito Federal (ICDF). Every year I take several improvement courses seeking constant learning to achieve quality medicine. I work at the Health Department of the Federal District (SESDF) and currently divide my work between management for children with hypermobility, Ehlers Danlos Syndrome and congenital heart disease. Recently, I started working at Clínica Médica Integral Excellence, of which I am a partner. I am a member of the Brazilian Society of Pediatrics and a member of the Hypermobility Committee of the Brazilian Society for the Study of Pain. I work in Pediatrics and Pediatric Cardiology. My main focus is on pathologies related to orthostatic intolerance, dysautonomies, hypermobility spectrum disorders and Ehlers Danlos Syndromes. In my free time, I administer the Instagram @ehlersdanlos_manada
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Andre Diggieri, MD
Pain Specialist; Médico da Dor; Orthopedic Surgery; Ortopedista; Acupunturista
CFDor
Avenida Arnolfo Azevedo, 70 – Consultório Pacaembu
Av. Portugal, 1599 – Consultório Brooklin
São Paulo, São Paulo 01236030
acliggieri@hotmail.com
+5511999826969
Professional Boards & Affiliations:
- Diretor e Fundador do Comite de Dor da Sociedade Brasileira de Ortopedia e Traumatologia
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I work in a private clinic and also in the public health system. In both of them I see a lot of patients that suffer from chronic pain and had never the opportunity to have the correct diagnose. In the public system i am a volunteer oh the Orthopedic Department and responsable to evaluate all the patients that went to Orthopedic Surgeries and still have pain, in this hospital abou 80% of our patients have HSD or EDS and weren´t diagnosed by other doctors. All the effort we are doing now is about a way to improve education and comunication to improve the quality of our assistance.
In the private clinic, I started with Sports Medicine, than naturally became a Chronic Pain Clinic, and now most of the patients are HSD or EDS and are there for different reasons, including orthopedic issues to neuro psycho somatic complaints. I work full time with HSD and EDS.
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Alexandre Amato, MD, PhD
Vascular Surgeon
Amato – Instituto de Medicina Avançada
Avenida Brasil
2283
São Paulo, SP 01431001
https://www.amato.com.br
+551150532222
alexandre@amato.com.br
Hospital Affiliations:
- Albert Einstein
Professional Boards & Affiliations:
- Sociedade Brasileira de Angiologia e Cirurgia Vascular
- Colégio Brasileiro de Cirurgiões
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We are a day hospital with many medical specialties, including the vascular surgeon. We treat EDS and related pathologies like lipedema and vascular compression syndromes. We published papers about EDS: Amato ACM, da Silva AEC, Bernal IM, et al. Combined Nutcracker and Ehlers-Danlos Syndromes: A Case Report. EJVES Vasc Forum 2020; 47: 12–17.
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Patricia Stott, DPT, PT, MS, ATC, CHT (Telehealth)
Functional Medicine, Health and Wellness, Physical Therapy, Reiki
Elevation Wellness
10200 West 44th Ave
Suite 139
Wheat Ridge, CO 80033
http://www.elevationwellness.co
720-815-6433
info@elevationwellness.co
This professional is a member of the International Consortium on EDS, HSD, and Related Disorders.
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I also am a telehealth provider outside of my state, internationally as needed. I can work with English-speaking patients only at this time as I do not have a translator.
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