A young woman has thanked social media users for helping her hunt down a correct diagnosis for an incurable genetic condition that had left doctors mystified.
Cheyenne Adele Rose told the image-sharing website Imgur of the numerous injuries, broken limbs and constant pain which threatened to end her career as a dancer.
She said she was “terrified” she would no longer be able to dance and that “countless neurologists, neurosurgeons and spinal specialists” could not tell her what was wrong.
The Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration.
This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner.
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