Internet diagnoses dancer with incurable condition after doctors left mystifiedPosted May 13, 2016
A young woman has thanked social media users for helping her hunt down a correct diagnosis for an incurable genetic condition that had left doctors mystified.
Cheyenne Adele Rose told the image-sharing website Imgur of the numerous injuries, broken limbs and constant pain which threatened to end her career as a dancer.
She said she was “terrified” she would no longer be able to dance and that “countless neurologists, neurosurgeons and spinal specialists” could not tell her what was wrong.
Categorized in: Ehlers-Danlos in the News