Published: 13/05/2016 Tags: Ehlers-Danlos in the News

Internet diagnoses dancer with incurable condition after doctors left mystified

A young woman has thanked social media users for helping her hunt down a correct diagnosis for an incurable genetic condition that had left doctors mystified.

Cheyenne Adele Rose told the image-sharing website Imgur of the numerous injuries, broken limbs and constant pain which threatened to end her career as a dancer.

She said she was “terrified” she would no longer be able to dance and that “countless neurologists, neurosurgeons and spinal specialists” could not tell her what was wrong.

Read the complete original article

Virtual Support Groups

Let’s Chat

Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?

Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.

Related Posts

View all Posts

Sign up to The Ehlers-Danlos Society bi-weekly newsletter