“As a patient and patient advocate as well as a public health professional, many areas touched on during the GLC2022 are applicable across multiple conditions and various patients. I plan to use the information I received to empower not only myself and other EDS patients, but patients across all conditions to get involved with their communities and in health educations.”
Virtual Support Groups
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences?
Our weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support.